International Consortium for Personalised Medicine

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Best Practice Example: HAZLO :

25 August 2021 – The objective of the HAZLO (“Do it”) project is to implement and evaluate a cardiac rehabilitation programme on low risk patients, called e-supervision, that is optimised for the daily life environment of the individual patient. The acceptance and adherence of patients can be improved in this way, while at the same time, the use of available resources is optimised.  
read more: Best Practice Example: HAZLO.

“The Personalised Medicine Journey” – Video :

16 July 2021 - Irene Norstedt (European Commission), Ejner Moltzen (ICPerMed) and Wolfgang Ballensiefen (ICPerMed) are taking us on a journey from the past to the future (vision) of personalised medicine and of ICPerMed itself in our video “The Personalised Medicine Journey”. 
read more: “The Personalised Medicine Journey” – Video.

Best Practice Example: MedeA – Personalised Prescription :

14 July 2021 – The MedeA Initiative is a personalized medicine (PM) clinical implementation programme in the Spanish Spanish region Extremadura. It is based on an analysis of each patient’s individual pharmacogenetic biomarkers, drug-drug interactions and clinical data and acts as a clinical decision support tool, suggesting the best drug or drug combination for the individual patient. 
read more: Best Practice Example: MedeA – Personalised Prescription.

ICPerMed presents itself and the ICPerMed Family – Videos :

5 July 2021 – ICPerMed is presenting itself and the ICPerMed Family through several short videos now published on the ICPerMed website. Get to know us better and learn about our partner projects in the areas of: Regional and international collaborations, project financing and regulatory frameworks in Personalised Medicine. 
read more: ICPerMed presents itself and the ICPerMed Family – Videos.

EP PerMed Information Event – Presentations online :

11 June 2021 – The virtual Information Event "European Partnership for Personalised Medicine (EP PerMed) calling for national and regional involvement" organised by ICPerMed and ERA PerMed took place on May 31, 2021. 
read more: EP PerMed Information Event – Presentations online.

Sino-EU PerMed Workshop :

8 June 2021 – Sino-EU PerMed invites to a workshop about Cooperation between China and Europe in Personalised Medicine. The results of a Sino-EU scientific and technological mapping and present best-practice examples for Sino-EU Cooperation will be presented. The workshop will be held in English and Chinese. 
read more: Sino-EU PerMed Workshop.

Best Practice Example: Strimvelis® Gene Therapy :

2 June 2021 - The ex-vivo gene therapy Strimvelis® was approved in Europe in 2016 to treat children affected by severe combined immunodeficiency due to adenosine deaminase deficiency (ADA-SCID) who lack a matching bone marrow donor. ADA-SCID is an inherited disorder caused by mutations in the ADA gene and results in a seriously compromised immune system. 
read more: Best Practice Example: Strimvelis® Gene Therapy.

EP PerMed Information Sheets :

27 May 2021 – In follow up of the “guidance document”, seven Information Sheets (download below) were developed by the ICPerMed and ERA PerMed “Preparatory Group”, comprising of four representatives of each initiative. The Information Sheets aim to promote the preparations of the European Partnership for Personalised Medicine (EP PerMed), which has been proposed to be one of the partnerships in Horizon Europe, the 9th framework programme of the European Union. 
read more: EP PerMed Information Sheets.

Update on the CSA Stars :

20 May 2021 – The European Coordination and Support Action STARS (Strengthening Training of Academia in Regulatory Science) aims to improve the direct regulatory impact of results obtained in medical research. Their recent activities include a publication, a training course and an inventory on regulatory affairs. 
read more: Update on the CSA Stars.

Best Practice Example: PERSEPHONE project :

5 May 2021 – The objective of the project “PERSonalised mEdicine for Patients with Haemophilia and Other rare bleediNg disordErs” (PERSEPHONE) has been to implement a personalised approach for the optimal multidisciplinary care of haemophilic patients. The patient management pathway was re-designed based on a Value Based Healthcare (VBH) approach. 
read more: Best Practice Example: PERSEPHONE project.

EP PerMed Information Day on May 31, 2021 – Registration is open :

28 April 2021 – The initiatives ICPerMed and ERA PerMed invite all interested stakeholders, in particular national and regional authorities (as ministries, funders, etc.) to the virtual event "European Partnership for Personalised Medicine calling for national and regional involvement" to inform about ICPerMed and ERA PerMed's proposal for EP PerMed, its objectives, activities and expected impacts and the overall framework for engagement in this partnership.  
read more: EP PerMed Information Day on May 31, 2021 – Registration is open.

Guide to a European Partnership for Personalised Medicine :

21 April 2021 – ICPerMed and ERA PerMed published a jointly developed guide for the candidate European Partnership for Personalised Medicine - EP PerMed. 
read more: Guide to a European Partnership for Personalised Medicine.

Save-the-date: EP PerMed Information Day on May 31, 2021 :

21 April 2021 – The initiatives ICPerMed and ERA PerMed invite all interested stakeholders, in particular national and regional authorities (as ministries, funders, etc.) to the virtual event “European Partnership for Personalised Medicine calling for national and regional involvement” to inform about ICPerMed and ERA PerMed's proposal for EP PerMed, its objectives, activities and expected impacts and the overall framework for engagement in this partnership. 
read more: Save-the-date: EP PerMed Information Day on May 31, 2021.

Review: Virtual ICPerMed Executive Committee Meeting :

15 April 2021 – On 23-24 February 2021, the ICPerMed Executive Committee met virtually to discuss and plan strategy and future activities of the consortium. 
read more: Review: Virtual ICPerMed Executive Committee Meeting .

Registration for new ICPerMed Stakeholder Forum :

15 April 2021 – The new ICPerMed Stakeholder Forum was launched on 25 February 2021, at the ICPerMed conference. 
read more: Registration for new ICPerMed Stakeholder Forum.

SAPHIRE Webinar :

12 April 2021 – The SAPHIRe consortium invites to the first in a series of online interactive workshops in spring 2021 on the specific needs of European regions concerning personalised medicine. The topic of the first webinar will be ‘Problems and solutions for personalised healthcare in remote, rural, and sparsely populated regions’ and will be organised on Tuesday 20 April 2021, 10h00-12h30. Registration is open. 
read more: SAPHIRE Webinar.

Regions4PerMed Workshops on Personalising Health Industry :

8 April 2021 – The ICPerMed-related CSA Regions4PerMed organizes two workshops on Personalising Health Industry. The first workshop “A Regional R&D Ecosystem for Personalising Health Industry – Spotlight on the Free State of Saxony” will take place on 28 April 2021 and the second workshop “Regional Translational Ecosystems Supportive of Personalising Health Industry” will take place on 19 May 2021. 
read more: Regions4PerMed Workshops on Personalising Health Industry.

ICPerMed State of the Art Report 2020 :

1 April 2021 – In November 2020, ICPerMed entered its fifth year and will share with this State of the Art Report 2020 an overview of its activities over the past four years, the progress made and future steps to be taken to fulfil its vision: 
read more: ICPerMed State of the Art Report 2020.

Press Release: ICPerMed Virtual Conference :

26 February 2021 – The second conference of ICPerMed “Personalised Medicine – From Vision to Practice” assembled virtually around 500 viewers from 57 countries. The conference was hosted by the French National Research Agency (ANR) on February 25-26, 2021 and presented solutions and strategies on how to successfully implement personalised medicine approaches. 
read more: Press Release: ICPerMed Virtual Conference.

Kickoff of the CSA EU-Africa PerMed :

04 March 2021 – A new member is joining the ICPerMed Family: the Coordination and Support Action (CSA) EU-Africa PerMed “Building links between Europe and Africa in Personalised Medicine”, funded by the European Union through its Framework Programme Horizon 2020 in support of ICPerMed. 
read more: Kickoff of the CSA EU-Africa PerMed.

Announcement of the Open Market Consultation of the EU :

26 February 2021 – An Open Market Consultation of the H2020 Pre-Commercial Procurement of Instand-NGS4P will be held on 22-23 March 2021 regarding integrated and standardized Next Generation Sequencing workflows for personalised therapy.  
read more: Announcement of the Open Market Consultation of the EU.

ICPerMed Virtual Conference 2021 started :

25 February 2021 – What are the challenges and the existing solutions for Personalised Medicine implementation? This key question is at the heart of the virtual conference organised on February 25-26, 2021. The event assembles around 600 participants from 57 different countries. 
read more: ICPerMed Virtual Conference 2021 started.

SAPHIRe survey on Organisation of Personalised Health :

24 February 2021 – This survey is set up give a comprehensive overview of the organisation of the competences related to Personalised Medicine at the different levels in the different Regions/Countries of Europe. 
read more: SAPHIRe survey on Organisation of Personalised Health.

Draft Concept Paper “European Partnership for Personalised Medicine” :

18 February 2021 – ICPerMed and ERA PerMed published a jointly developed draft concept paper for the candidate European Partnership for Personalised Medicine - EP PerMed. 
read more: Draft Concept Paper “European Partnership for Personalised Medicine”.

Best Practice Example: MASTER – Innovation in Personalised Oncology :

08 February 2021 – The MASTER (Molecularly Aided Stratification for Tumour Eradication Research) program is a personalised oncology network that illustrates the clinical potential of full genetic analyses and individually tailored therapy in young adults with advanced cancers and patients with rare tumours for which often only few treatment options are available. 
read more: Best Practice Example: MASTER – Innovation in Personalised Oncology.

ICPerMed Conference 2021: Virtual platform is now open! :

01 February 2021 – The virtual platform for the ICPerMed conference 2021 "Personalised Medicine – from Vision to Practice" is now open. The conference will take place virtually on February 25-26. During two half-days, ICPerMed will discuss and promote solutions and strategies on how to implement successfully personalised medicine approaches. 
read more: ICPerMed Conference 2021: Virtual platform is now open!.

PerMedCoE: Exascale-ready cell-level simulations :

21 January 2021 - Coordinated by the Barcelona Supercomputing Center (BSC) and funded by the European Commission, this recently launched high-performance computing (HPC) centre of excellence will optimise codes for cell-level simulations and bridge the gap between organ and molecular simulations, thus contributing to the European Personalised Medicine Roadmap.  
read more: PerMedCoE: Exascale-ready cell-level simulations .

CSA STARS - Strengthening Training of Academia in Regulatory Science :

20 January 2021 - This coordination and support action funded by the EU aims to improve the direct regulatory impact of results obtained in medical research. More information about their current activities can be found in their recently published newsletter. 
read more: CSA STARS - Strengthening Training of Academia in Regulatory Science.

HEcoPerMed published the 1st Newsletter :

19. January 2021 – CSA HEcoPerMed stands for “Healthcare- and pharmaeconomics in support of the International Consortium for Personalised Medicine – ICPerMed” 
read more: HEcoPerMed published the 1st Newsletter.

ERA PerMed Information Event JTC2021 :

11. January 2021 – ERA PerMed will organize an Information Event for potential applicants for the Joint Transnational Call 2021 “MULTIDISCIPLINARY RESEARCH PROJECTS ON PERSONALISED MEDICINE – DEVELOPMENT OF CLINICAL SUPPORT TOOLS FOR PERSONALISED MEDICINE IMPLEMENTATION”. The meeting will take place online on the 25th of January 2021, 13:00 to 14:30 (CET). 
read more: ERA PerMed Information Event JTC2021.

The Flemish government of Belgium joins ICPerMed :

4 January 2021 – ICPerMed welcomes the Department of Economy, Science and Innovation of the Flemish government (EWI Department) as its new member. 
read more: The Flemish government of Belgium joins ICPerMed.

Fourth ERA PerMed Call for Proposals open :

15 December 2020 – The ERA-NET ERA PerMed has launched the fourth Joint Transnational Call for multidisciplinary research projects on Personalised Medicine. With this call ERA PerMed wants to align national research strategies, promote excellence, reinforce the competitiveness of European players in Personalised Medicine, and enhance the European collaboration with non-EU countries. 
read more: Fourth ERA PerMed Call for Proposals open.

Best Practice Example: EMR for personalised treatment :

Healthcare organizational scenarios are changing rapidly, and this requires the re-design of the hospital processes through the adoption of new organizational models, specifically for the proactive management of chronic and fragile patients. The introduction of new services for patients and the use of Telemedicine and Artificial Intelligence technologies are key elements to support the expected change. 
read more: Best Practice Example: EMR for personalised treatment.

SAPHIRe workshop: Health data for innovation :

24 November 2020 – Through its partnership and bottom-up approach, the smart specialisation agenda brings together local authorities, academia, business spheres and the civil society, working for the implementation of long-term growth strategies supported by EU funds. All across Europe companies arise that produce or use health data. 
read more: SAPHIRe workshop: Health data for innovation.

Brazilian Agency CNPq joins ICPerMed :

13 November 2020 – ICPerMed welcomes CNPq as observer. CNPq is the largest Federal Research Funding Agency of Brazil, operating also via a partnership with the Brazilian Ministry of Health which has recently started the Brazilian National Program of Genomic and Precision Health, Genomas Brasil. 
read more: Brazilian Agency CNPq joins ICPerMed.

SAPHIRe Workshop: Making data usable :

12 November 2020 – EU citizens have the right to access healthcare in any EU country and to be reimbursed for care abroad by their home country. To realise this right, the appropriate infrastructures and standards should be created. Regional providers of health data, such as (university or regional) hospitals, first line healthcare or genetic centres, collect massive amounts of health data. This creates a large need for interoperable and accessible data. 
read more: SAPHIRe Workshop: Making data usable.

Best Practice Example: 2025 France Genomic Medicine Initiative :

3 November 2020 – Genomic medicine is profoundly changing patient care. Routine genome sequencing will enable a high number of patients to benefit from more personalised diagnostics and personalised therapeutic care. This includes rare diseases and cancer but also more common diseases (e.g. metabolic, cardiovascular, neurological diseases). 
read more: Best Practice Example: 2025 France Genomic Medicine Initiative.

ICPerMed conference Personalised Medicine – programme released :

2 November 2020 – The preliminary programme for the ICPerMed conference "Personlised Medicine – From Vision to Practice" is now available. Due to the COVID-19 pandemic, the second ICPerMed Conference, initially scheduled for October 15-16, 2020, will now take place in February 25-26, 2021 in Paris at La Maison de la Chimie. 
read more: ICPerMed conference Personalised Medicine – programme released.

Update on European Partnership on Personalised Medicine :

2 November 2020 – In preparation of the European Commission’s member states consultation for the co-funded European Partnership for Personalised Medicine, taking place most probably at the end of 2020 or beginning of 2021, ICPerMed together with ERA PerMed developed a supporting document in form of a concept paper that was officially passed on to the European Commission on October 13, 2020. 
read more: Update on European Partnership on Personalised Medicine .

New ICPerMed chair and vice chair elected :

2 November 2020 – ICPerMed is glad to announce that Ejner Moltzen from Innovation Fund Denmark has been elected new chair of the ICPerMed Executive Committee and Hemma Bauer from the Federal Ministry of Science, Research and Economy in Austria has been elected new vice chair of the ICPerMed Executive Committee. 
read more: New ICPerMed chair and vice chair elected.

COVID-19 and Personalised Medicine :

29 October 2020 – Professor Yazdan Yazdanpanah and his colleague Dr Olivier Robineau share with ICPerMed their first lessons learned on the health crisis and the contribution of personalised medicine approaches to fight infectious diseases through the light of the COVID-19 pandemic. 
read more: COVID-19 and Personalised Medicine.

4th Annual Meeting of the ÖPPM :

28 October 2020 – The 4th Annual Meeting of the ÖPPM 2020 will be guided by the main topic “Digitalization in Personalized Medicine” The webinar series will start on 20.10.2020 featuring international and national keynotes on societal and technological aspects. 
read more: 4th Annual Meeting of the ÖPPM.

Workshop: Ethical, Legal, Social Aspects of personalised Medicine :

28 October 2020 – On November 17 and 18, 2020 the ELSA technical Workshop takes place. The main goal is an exchange of insights on key ethical, legal and social issues in personalised medicine (PM) research and implementation in Europe and in Latin America and the Caribbean (LAC). 
read more: Workshop: Ethical, Legal, Social Aspects of personalised Medicine.

Webinar Series on Personalised Medicine :

20 October 2020 – The Royal Society of Medicine in London organises a new webinar series on personalised medicine. The series starts on 20 October and explores the concept of personalised care and the role of digital technology in delivering these services. Recordings of each episode are available for all registered delegates to watch on demand for a month after each live broadcast. 
read more: Webinar Series on Personalised Medicine.

Pre-Announcement JTC 2021 :

14 October 2020 – ERA-PerMed will launch its new call with a budget of approximately 16 million euros on December 14th 2020. Pre-proposals can be submitted until March 4th 2021.It is expected that consortia invited for the full-proposal stage, will need to submit their proposal on June 16th, 2021. 
read more: Pre-Announcement JTC 2021.

SAPHIRe workshop: access to health data :

13 October 2020 – To gain a better understanding on the regional perspective on access to health data, SAPHIRe will host an online interactive workshop on Thursday 29th October 2020, 10h30-12h30 CET. The workshop will discuss the access to health data from different points-of-view. Regional actors such as research institutions, hospitals, industry and individuals will be heard. 
read more: SAPHIRe workshop: access to health data.

Joint Sustainability Workshop of ICPerMed and ERA PerMed :

14 October 2020 – On September 10-11, 2020, the first Joint Workshop of ICPerMed and the closely related initiative ERA PerMed took place. Members of both initiatives discussed options for continuing their work in the new framework programme of the European Commission “Horizon Europe” and in particular the potential European Partnership in Personalised Medicine.  
read more: Joint Sustainability Workshop of ICPerMed and ERA PerMed.

Online Conference: Personalising Health Industry :

30 September 2020 - The conference organised by Regions4PerMed will take place online on October 15-16.  
read more: Online Conference: Personalising Health Industry.

ICPerMed Recognition 2020 – winners chosen :

16 July 2020 – ICPerMed announces the winners of the of the ICPerMed "Best Practice in Personalised Medicine" Recognition 2020. 
read more: ICPerMed Recognition 2020 – winners chosen.

ICPerMed Mapping Database

The ICPerMed database gives an overview on the actions in the field of Personalised Medicine performed in the ICPerMed member states and may assist interested users in finding suitable funding opportunities and information about potential funders in their respective country and/or region. The database allows the user to search for programmes susceptible to finance research projects in the field of personalised medicine.
>> read more

ICPerMed Partnering Tool

The ICPerMed Partnering Tool facilitates networking among universities, research and patient organizations, SMEs, industry and all other stakeholders interested in personalised medicine. The ICPerMed Partnering Tool offers you to search for partners and to present your expertise to the personalised medicine research community. By completing and activating your profile you publish your partnering profile to all users and present your collaboration offers.
>> read more