International Consortium for Personalised Medicine

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EU-LAC PerMed Clinical Trials Regulatory and Funding Information :

28 July 2023 - One of the activities of the EU-LAC PerMed project was the Virtual Helpdesk for clinical trials regulatory and funding information. It aimed to provide information on regulatory and funding agencies regarding clinical trials in Latin America and Europe, and to facilitate the establishment of partnerships in clinical trials on Personalised Medicine across countries and regions. This information is now available as a report for download. 
read more: EU-LAC PerMed Clinical Trials Regulatory and Funding Information.

New Review Paper on European PM perspective :

27 July 2023 – In September 2022, the conference “Cutting-Edge Implementation of Precision Medicine in Europe” took place in Stockholm, Sweden. All presenters, including IC PerMed chair Ejner Moltzen, provided input to a review/status paper on PM that is now published in the Journal of Internal Medicine. 
read more: New Review Paper on European PM perspective.

Third ICPerMed Training Event on September 22nd :

20 July 2023 - ICPerMed is happy to announce the 3rd “ICPerMed Training – Research Infrastructures in Personalised Medicine: use, advantages and challenges” which will take place on September 22nd, from 09:00 to 17:30, virtually. Applications will be accepted till September, 18th 12:00 o'clock CEST.  
read more: Third ICPerMed Training Event on September 22nd.

Best practice example: The Mosaic Initiative :

19 July 2023 - IC PerMed's latest Best Practice Example in Personalised Medicine features Mosaic (Psifas in Hebrew), Israel's National Genomic Medicine Initiative. It is developing a unique infrastructure for facilitating large scale prospective studies based on advanced integration of community and hospitals longitudinal retrospective clinical data, fully sequenced genomes and a platform for patient recall and follow up studies.  
read more: Best practice example: The Mosaic Initiative.

ASRT from Egypt joins ICPerMed :

06 July 2023 – ICPerMed welcomes the Academy of Scientific Research and Technology (ASRT) as new member. ASRT is a national coordinating body and funding organisation for research and innovation in Egypt. 
read more: ASRT from Egypt joins ICPerMed.

ICPerMed State of the Art Report 2022 published :

30 June 2023 – The ICPerMed State of the Art Report 2022 is published and provides information about ICPerMed's activities, the upcoming European Partnership for Personalised Medicine (EP PerMed) and activities in the field of Personalised Medicine. 
read more: ICPerMed State of the Art Report 2022 published.

Overcome Barriers in Personalised Medicine Research :

14 June 2023 - One aim of ICPerMed is to accelerate the translation and implementation of results of personalised medicine (PM) research projects. In order to understand the barriers and gaps currently encountered by researchers, the ICPerMed Secretariat conducted and analysed a survey with researchers from PM projects. The results of the analysis, including potential strategies to overcome the barriers, are now available for download. 
read more: Overcome Barriers in Personalised Medicine Research.

Workshop: Advancing PM through Technology Development :

02 June 2023 - The 5th ICPerMed Workshop will focus and explore the latest developments in technology and innovation that are driving the field of personalised medicine. The workshop aims to showcase experiences of researchers, clinicians, biotech and industry leaders, to provide insights on how to drive personalised medicine related innovations in the healthcare sector, and to present selected and promising technologies/tools. This ICPerMed event will also promote good practices. 
read more: Workshop: Advancing PM through Technology Development.

ICPerMed Brief: Optimizing Clinical Research for PM :

22 May 2023 - ​ICPerMed published a set of recommendations for optimizing personalised medicine (PM) related clinical research as a brief specifically addressed to policy, funding bodies and regulatory agencies. These recommendations have been elaborated by the ICPerMed Working Group „Clinical Studies in Personalised Medicine“ together with the CSA PERsonalised Medicine Trials project, PERMIT. 
read more: ICPerMed Brief: Optimizing Clinical Research for PM.

SRIA for Personalised Medicine :

28 April 2023 - ICPerMed is happy to announce the publication of the Strategic Research and Innovation Agenda (SRIA) for Personalised Medicine (PM). This SRIA will support a wide range of stakeholders and experts to further develop programs, activities, and research towards PM and care, as well as prevention. In line with this mission, its main intention is to support the planned new European Partnership for Personalised Medicine (EP PerMed).  
read more: SRIA for Personalised Medicine.

Pamplona Workshop Report published :

24 April 2023 - The 4th ICPerMed Workshop 'Preparing the Future for Personalised Medicine: EP PerMed' took place in Pamplona (Navarra, Spain) on January 17-18, 2023. The associated report has now been published. 
read more: Pamplona Workshop Report published.

Open Access in Personalised Medicine :

24 March 2023 - Open Science and Open Access are key aspects of the Responsible Research and Innovation (RRI) approach. It provides online, free, re-usable and shared access to scientific information (peer-reviewed scientific research articles and research data). In order to implement open access policies and data integration of research data into European databases, ICPerMed has compiled guidelines for personalised medicine research projects. 
read more: Open Access in Personalised Medicine.

Report on SRIA consultation for EP PerMed :

13 March 2023 – Publication of the report on the open consultation for the Strategic Research and Innovation Agenda (SRIA) in support for the European Partnership for Personalised Medicine, EP PerMed.  
read more: Report on SRIA consultation for EP PerMed.

EU-Africa PerMed Webinar: Health Technology Assessment :

09 March 2023 - Health Technology Assessment (HTA) on personalised medicine focuses on assessing the effectiveness, safety, and cost-effectiveness of diagnostic tools and treatments tailored to individual patients based on their genetic, environmental, and lifestyle factors. HTA can provide important information to support decision-making in the adoption, funding, and use of these technologies in clinical practice. 
read more: EU-Africa PerMed Webinar: Health Technology Assessment.

ERA PerMed’s Final Symposium of the JTC2018 :

02 March 2023 - ERA PerMed's final symposium of the Joint Transnational Call 2018 took place from February 28 to March 1 in Cluj-Napoca, Romania and was attended by around 70 on-site and 30 online participants, including researchers and representatives from the European Commission, funding organisations and scientific experts. The symposium aimed to provide the projects with an opportunity to present and discuss their work and results, and promote interactions between the various stakeholders. 
read more: ERA PerMed’s Final Symposium of the JTC2018.

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