“The Personalised Medicine Journey” – Video :

16 July 2021 - Irene Norstedt (European Commission), Ejner Moltzen (ICPerMed) and Wolfgang Ballensiefen (ICPerMed) are taking us on a journey from the past to the future (vision) of personalised medicine and of ICPerMed itself in our video “The Personalised Medicine Journey”. 
read more: “The Personalised Medicine Journey” – Video.

Best Practice Example: MedeA – Personalised Prescription :

14 July 2021 – The MedeA Initiative is a personalized medicine (PM) clinical implementation programme in the Spanish Spanish region Extremadura. It is based on an analysis of each patient’s individual pharmacogenetic biomarkers, drug-drug interactions and clinical data and acts as a clinical decision support tool, suggesting the best drug or drug combination for the individual patient. 
read more: Best Practice Example: MedeA – Personalised Prescription.

ICPerMed presents itself and the ICPerMed Family – Videos :

5 July 2021 – ICPerMed is presenting itself and the ICPerMed Family through several short videos now published on the ICPerMed website. Get to know us better and learn about our partner projects in the areas of: Regional and international collaborations, project financing and regulatory frameworks in Personalised Medicine. 
read more: ICPerMed presents itself and the ICPerMed Family – Videos.

EP PerMed Information Event – Presentations online :

11 June 2021 – The virtual Information Event "European Partnership for Personalised Medicine (EP PerMed) calling for national and regional involvement" organised by ICPerMed and ERA PerMed took place on May 31, 2021. 
read more: EP PerMed Information Event – Presentations online.

Sino-EU PerMed Workshop :

8 June 2021 – Sino-EU PerMed invites to a workshop about Cooperation between China and Europe in Personalised Medicine. The results of a Sino-EU scientific and technological mapping and present best-practice examples for Sino-EU Cooperation will be presented. The workshop will be held in English and Chinese. 
read more: Sino-EU PerMed Workshop.

Best Practice Example: Strimvelis® Gene Therapy :

2 June 2021 - The ex-vivo gene therapy Strimvelis® was approved in Europe in 2016 to treat children affected by severe combined immunodeficiency due to adenosine deaminase deficiency (ADA-SCID) who lack a matching bone marrow donor. ADA-SCID is an inherited disorder caused by mutations in the ADA gene and results in a seriously compromised immune system. 
read more: Best Practice Example: Strimvelis® Gene Therapy.

EP PerMed Information Sheets :

27 May 2021 – In follow up of the “guidance document”, seven Information Sheets (download below) were developed by the ICPerMed and ERA PerMed “Preparatory Group”, comprising of four representatives of each initiative. The Information Sheets aim to promote the preparations of the European Partnership for Personalised Medicine (EP PerMed), which has been proposed to be one of the partnerships in Horizon Europe, the 9th framework programme of the European Union. 
read more: EP PerMed Information Sheets.

Update on the CSA Stars :

20 May 2021 – The European Coordination and Support Action STARS (Strengthening Training of Academia in Regulatory Science) aims to improve the direct regulatory impact of results obtained in medical research. Their recent activities include a publication, a training course and an inventory on regulatory affairs. 
read more: Update on the CSA Stars.

Best Practice Example: PERSEPHONE project :

5 May 2021 – The objective of the project “PERSonalised mEdicine for Patients with Haemophilia and Other rare bleediNg disordErs” (PERSEPHONE) has been to implement a personalised approach for the optimal multidisciplinary care of haemophilic patients. The patient management pathway was re-designed based on a Value Based Healthcare (VBH) approach. 
read more: Best Practice Example: PERSEPHONE project.

EP PerMed Information Day on May 31, 2021 – Registration is open :

28 April 2021 – The initiatives ICPerMed and ERA PerMed invite all interested stakeholders, in particular national and regional authorities (as ministries, funders, etc.) to the virtual event "European Partnership for Personalised Medicine calling for national and regional involvement" to inform about ICPerMed and ERA PerMed's proposal for EP PerMed, its objectives, activities and expected impacts and the overall framework for engagement in this partnership.  
read more: EP PerMed Information Day on May 31, 2021 – Registration is open.

Guide to a European Partnership for Personalised Medicine :

21 April 2021 – ICPerMed and ERA PerMed published a jointly developed guide for the candidate European Partnership for Personalised Medicine - EP PerMed. 
read more: Guide to a European Partnership for Personalised Medicine.

Review: Virtual ICPerMed Executive Committee Meeting :

15 April 2021 – On 23-24 February 2021, the ICPerMed Executive Committee met virtually to discuss and plan strategy and future activities of the consortium. 
read more: Review: Virtual ICPerMed Executive Committee Meeting .

Registration for new ICPerMed Stakeholder Forum :

15 April 2021 – The new ICPerMed Stakeholder Forum was launched on 25 February 2021, at the ICPerMed conference. 
read more: Registration for new ICPerMed Stakeholder Forum.

Regions4PerMed Workshops on Personalising Health Industry :

8 April 2021 – The ICPerMed-related CSA Regions4PerMed organizes two workshops on Personalising Health Industry. The first workshop “A Regional R&D Ecosystem for Personalising Health Industry – Spotlight on the Free State of Saxony” will take place on 28 April 2021 and the second workshop “Regional Translational Ecosystems Supportive of Personalising Health Industry” will take place on 19 May 2021. 
read more: Regions4PerMed Workshops on Personalising Health Industry.

ICPerMed State of the Art Report 2020 :

1 April 2021 – In November 2020, ICPerMed entered its fifth year and will share with this State of the Art Report 2020 an overview of its activities over the past four years, the progress made and future steps to be taken to fulfil its vision: 
read more: ICPerMed State of the Art Report 2020.

Kickoff of the CSA EU-Africa PerMed :

04 March 2021 – A new member is joining the ICPerMed Family: the Coordination and Support Action (CSA) EU-Africa PerMed “Building links between Europe and Africa in Personalised Medicine”, funded by the European Union through its Framework Programme Horizon 2020 in support of ICPerMed. 
read more: Kickoff of the CSA EU-Africa PerMed.

Announcement of the Open Market Consultation of the EU :

26 February 2021 – An Open Market Consultation of the H2020 Pre-Commercial Procurement of Instand-NGS4P will be held on 22-23 March 2021 regarding integrated and standardized Next Generation Sequencing workflows for personalised therapy.  
read more: Announcement of the Open Market Consultation of the EU.

ICPerMed Virtual Conference 2021 started :

25 February 2021 – What are the challenges and the existing solutions for Personalised Medicine implementation? This key question is at the heart of the virtual conference organised on February 25-26, 2021. The event assembles around 600 participants from 57 different countries. 
read more: ICPerMed Virtual Conference 2021 started.

SAPHIRe survey on Organisation of Personalised Health :

24 February 2021 – This survey is set up give a comprehensive overview of the organisation of the competences related to Personalised Medicine at the different levels in the different Regions/Countries of Europe. 
read more: SAPHIRe survey on Organisation of Personalised Health.

Draft Concept Paper “European Partnership for Personalised Medicine” :

18 February 2021 – ICPerMed and ERA PerMed published a jointly developed draft concept paper for the candidate European Partnership for Personalised Medicine - EP PerMed. 
read more: Draft Concept Paper “European Partnership for Personalised Medicine”.

Best Practice Example: MASTER – Innovation in Personalised Oncology :

08 February 2021 – The MASTER (Molecularly Aided Stratification for Tumour Eradication Research) program is a personalised oncology network that illustrates the clinical potential of full genetic analyses and individually tailored therapy in young adults with advanced cancers and patients with rare tumours for which often only few treatment options are available. 
read more: Best Practice Example: MASTER – Innovation in Personalised Oncology.

PerMedCoE: Exascale-ready cell-level simulations :

21 January 2021 - Coordinated by the Barcelona Supercomputing Center (BSC) and funded by the European Commission, this recently launched high-performance computing (HPC) centre of excellence will optimise codes for cell-level simulations and bridge the gap between organ and molecular simulations, thus contributing to the European Personalised Medicine Roadmap.  
read more: PerMedCoE: Exascale-ready cell-level simulations .

CSA STARS - Strengthening Training of Academia in Regulatory Science :

20 January 2021 - This coordination and support action funded by the EU aims to improve the direct regulatory impact of results obtained in medical research. More information about their current activities can be found in their recently published newsletter. 
read more: CSA STARS - Strengthening Training of Academia in Regulatory Science.

HEcoPerMed published the 1st Newsletter :

19. January 2021 – CSA HEcoPerMed stands for “Healthcare- and pharmaeconomics in support of the International Consortium for Personalised Medicine – ICPerMed” 
read more: HEcoPerMed published the 1st Newsletter.

The Flemish government of Belgium joins ICPerMed :

4 January 2021 – ICPerMed welcomes the Department of Economy, Science and Innovation of the Flemish government (EWI Department) as its new member. 
read more: The Flemish government of Belgium joins ICPerMed.

Fourth ERA PerMed Call for Proposals open :

15 December 2020 – The ERA-NET ERA PerMed has launched the fourth Joint Transnational Call for multidisciplinary research projects on Personalised Medicine. With this call ERA PerMed wants to align national research strategies, promote excellence, reinforce the competitiveness of European players in Personalised Medicine, and enhance the European collaboration with non-EU countries. 
read more: Fourth ERA PerMed Call for Proposals open.

Best Practice Example: EMR for personalised treatment :

Healthcare organizational scenarios are changing rapidly, and this requires the re-design of the hospital processes through the adoption of new organizational models, specifically for the proactive management of chronic and fragile patients. The introduction of new services for patients and the use of Telemedicine and Artificial Intelligence technologies are key elements to support the expected change. 
read more: Best Practice Example: EMR for personalised treatment.

Best Practice Example: 2025 France Genomic Medicine Initiative :

3 November 2020 – Genomic medicine is profoundly changing patient care. Routine genome sequencing will enable a high number of patients to benefit from more personalised diagnostics and personalised therapeutic care. This includes rare diseases and cancer but also more common diseases (e.g. metabolic, cardiovascular, neurological diseases). 
read more: Best Practice Example: 2025 France Genomic Medicine Initiative.

New ICPerMed chair and vice chair elected :

2 November 2020 – ICPerMed is glad to announce that Ejner Moltzen from Innovation Fund Denmark has been elected new chair of the ICPerMed Executive Committee and Hemma Bauer from the Federal Ministry of Science, Research and Economy in Austria has been elected new vice chair of the ICPerMed Executive Committee. 
read more: New ICPerMed chair and vice chair elected.

COVID-19 and Personalised Medicine :

29 October 2020 – Professor Yazdan Yazdanpanah and his colleague Dr Olivier Robineau share with ICPerMed their first lessons learned on the health crisis and the contribution of personalised medicine approaches to fight infectious diseases through the light of the COVID-19 pandemic. 
read more: COVID-19 and Personalised Medicine.

Pre-Announcement JTC 2021 :

14 October 2020 – ERA-PerMed will launch its new call with a budget of approximately 16 million euros on December 14th 2020. Pre-proposals can be submitted until March 4th 2021.It is expected that consortia invited for the full-proposal stage, will need to submit their proposal on June 16th, 2021. 
read more: Pre-Announcement JTC 2021.

SAPHIRe workshop: access to health data :

13 October 2020 – To gain a better understanding on the regional perspective on access to health data, SAPHIRe will host an online interactive workshop on Thursday 29th October 2020, 10h30-12h30 CET. The workshop will discuss the access to health data from different points-of-view. Regional actors such as research institutions, hospitals, industry and individuals will be heard. 
read more: SAPHIRe workshop: access to health data.

ICPerMed Recognition 2020 – winners chosen :

16 July 2020 – ICPerMed announces the winners of the of the ICPerMed "Best Practice in Personalised Medicine" Recognition 2020. 
read more: ICPerMed Recognition 2020 – winners chosen.