Preparing the Future for Personalised Medicine: EP PerMed
The goal of this workshop was to discuss with the different involved stakeholders three areas that are relevant for realising the full potential of a Personalised Medicine approach: research, innovation, and implementation. The aim was also to include other essential transversal aspects, such as the appropriate supporting framework including incentives, regulation, business models, regional and international perspectives, infrastructures and data access, patients and citizens engagement.
The workshop allowed a broad range of experts to react and contribute to the continued work of developing a strategic research and innovation agenda (SRIA) for the future European Partnership for Personalised Medicine (EP PerMed). They gave input to key areas such as: whole innovation system; implementation system; education; involvement of industry, patients representatives, payers, providers.
There were four sessions for discussions about the following topics:
- Patient engagement and education
- International and regional collaboration
- The Personalised Medicine innovation system and industrial collaboration
- Health system, providers, medical societies, payers and insurances
Meeting start: January 17, 9:00 am
Meeting end: January 18, 13:45
Location: Navarra Conference Center, Pamplona, Spain
The workshop was on invitation only.
The workshop agenda can be downloaded here.

This is the report of the 4th ICPerMed Workshop, entitled ‘Preparing the Future for Personalised Medicine: EP PerMed’, which took place in Pamplona (Navarra, Spain) on January 17-18, 2023. The goal of this workshop was to discuss with the different involved stakeholders three areas that are relevant for realising the full potential of a Personalised Medicine approach: research, innovation, and implementation. Other essential transversal aspects were also addressed, such as the appropriate supporting framework including incentives, regulation, business models, regional and international perspectives, infrastructures and data access, patients and citizens engagement.
Day 1
Time schedule | Topic |
---|---|
09:00 – 09:30 | Registration |
9:30 – 10:00 | Welcome & Introduction Cristina Nieto (Host, National Health Institute Carlos III, ISCIII) Mikel Irujo (Host, Regional Minister for Economic and Business Development of the Government of Navarre) Ejner Moltzen (Chair of ICPerMed, Innovation Fund Denmark) Carmen Laplaza Santos(European Commission) |
10:00 – 11:00 | ICPerMed ‘Best Practice in Personalised Medicine’ Recognition 2021-2022 Chiara Ciccarelli (ICPerMed Secretariat, International Relations Officer, Italian Ministry of Health. On behalf of Gaetano Guglielmi). Moderator Dr Mario Alberto Battaglia, “Databases and registers toward Barcoding Multiple Sclerosis”. Italy Download presentation Dr Annalisa Trama, “The first international federated clinical registry on rare head and neck cancers”. Italy Download presentation Dr Julia Stingl, “Data sharing and re-use in the framework of the ArtiPro ERA PerMed project”. Germany Download presentation Dr Ludmilla Thomé Domingos Chinen, “A higher platelet-to-lymphocyte ratio is prevalent in the presence of circulating tumor microemboli and is a potential prognostic factor for non-metastatic colon cancer”. Brazil |
11:00 – 11:30 | Coffee break |
11:35 – 11:55 | Introduction to EP PerMed Wolfgang Ballensiefen (EP PerMed Chair, DLR) Download presentation |
11:55 – 12:15 | EP PerMed Strategic Research and Innovation Agenda (SRIA) and Draft Proposal Presentation Monika Frenzel (EP PerMed co-Chair, ANR) Download presentation |
12:15 – 13:30 | 1st Plenary session: Patient and Citizen Engagement and Education Moderation: Maria Jose Ruiz Alvarez, Italian Ministry of Health Marius Geantă, Centre for Innovation in Medicine Larisa Aragón Castro, National Data Stream (NDS) Consortia Nathalie Lambrechts, Biomedical Research at VITO Merel Hennink, FT3 |
13:30 – 14:30 | Lunch break |
14:30 – 15:00 | Best Practice of Overcoming Personalised Medicine Implementation Barriers Alberto Ortiz, co-funded ERA-PerMed Project 2018 Call “Multidimensional stratification for treatment of acute kidney injury – Kidney Attack Project” (Health Research Institute of Jiménez Díaz Foundation IIS-3FJD) Download presentation Violeta Serra, funded by ERA-PerMed, Joint Transnational Call 2019 “Patient stratification based on DNA repair functionality for cancer precision medicine – RAD51 Predict Project” (Vall d’ Hebron Institute of Oncology) Download presentation |
15:30 – 16:45 | 2nd Plenary session: Key Areas: International and Regional Perspectives of Personalised Medicine Moderation: Monika Frenzel, ANR Gianni D’Errico, Tuscany Life Sciences Kathleen D’Hondt, Flemish Government Joaquín Guinea, InnovaTec Étienne Richer, IRSC | CIHR Institute of Genetics Maria Jose Ruiz Alvarez, Italian Ministry of Health Ángel Alonso Sánchez, Navarrabiome |
16:45 – 17:15 | Coffee break |
17:15 – 17:35 | Conclusions of the discussions on Plenary Sessions Maria Jose Ruiz Alvarez (Italian Ministry of Health) & Monika Frenzel (ANR) |
20:30 | Dinner. El Mercao Restaurant |
Day 2
Time schedule | Topic |
---|---|
08:30 – 09:00 | Key-note lecture of a Personalised Medicine expert in the local community (Region of Navarra) Gonzalo Rodríguez, a representative of Navarra Health Cluster Download presentation |
9:00 – 10:15 | 3rd Plenary session: Innovation System and Industrial Collaboration Moderation: Ejner Moltzen (Chair of ICPerMed, Innovation Fund Denmark) Jean-Marc Bourez, EIT Health Nathalie Seigneuret, IHI Europe Niklas Blomberg, ELIXIR Nataša Debeljak, University of Ljubljana Jens Habermann, BBMRI-ERIC Maria Orr, AstraZeneca Ralf Herold and Andrew Thomson, EMA |
10:15 – 10:45 | Coffee break |
10:45 – 12:00 | 4th Plenary session: Health Systems Providers, Payers, Insurances and Medical Societies Moderation: Hemma Bauer, Austrain Ministry of Education, Science and Research Astrid Vicente, National Health Institute Doutor Ricardo Jorge Toni Andreu, EATRIS Paula García, ECRIN Ramiro Gilardino, Global Health Technology Assessment Policy Lead. Pharmaceutical Executive. Terje Peetso, North Estonia Medical Centre Juan José Beloqui, PharmaNAGEN Coordinator, Navarrabiomed Vanessa Terzo, Italian Ministry of Health |
12:00 – 12:15 | Conclusions of the discussions on Plenary Sessions Ejner Moltzen (Chair of ICPerMed, Innovation Fund Denmark) & Hemma Bauer (Austrian Ministry of Education, Science and Research) |
12:15 – 12:25 | Contributions for the planned proposal of EP PerMed Monika Frenzel (EP PerMed co-Chair, ANR) |
12:25 – 12:30 | Wrap up & closing remarks Ejner Moltzen (ICPerMed Chair, Innovation Fund Denmark) Wolfgang Ballensiefen (EP PerMed Chair, DLR) Cristina Nieto (Host, ISCIII) |
12:30 – 13:00 | Lunch break |
13:00 – 15:30 | EP PerMed Preparatory Group meeting (internal) |