he 2nd ICPerMed Workshop “Citizens, patients and implementation” was organised by the Spanish ICPerMed member ISCIII and took place from 5-6 November 2019 in Madrid.
There were high-level plenary sessions and four working groups. The working groups met in parallel and discussed the following topics
- Personalised medicine: How to ensure awareness and empowerment for all citizens?
- Which are the Ethical, Legal and Social Implications (ELSI) of personalised medicine research and implementation?
- Transfer of research results into the market: How to optimise a safe, fast and economic process to implement personalised medicine approaches?
- Personalised medicine in the health system: How to ensure sustainability and an effective collaboration between all health care players as well as with prevention services?
Agenda
| Plenary Session 1.1 – Welcome & Introduction Jan-Ingvar Jönsson (ICPerMed Chair) Carmen Laplaza Santos (European Commission Representative) Raquel Yotti Alvarez (General Director Institute of Health Carlos III, Spain) Pedro Duque (Minister of Science, Innovation and Universities of the Government of Spain) Video Presentations |
| Plenary Session 1.2 – keynote lectures Strategic challenge on the sustainable implementation of Personalised Medicine Research & Innovation outcomes: Liisa-Maria Voipio-Pulkki, MD, PhD (Director General & Chief Medical Officer, Ministry of Social Affairs and Health, Finland) GDRP in Personalised Medicine Research & Implementation Claire Gayrel, PhD (Legal Officer, European Data Protection Supervisor, Belgium) Video Presentation |
| Plenary Session 2.1 ICPerMed ‘Best Practice in Personalised Medicine’ Recognition 2019 – award ceremony and oral presentations of awardees Jan-Ingvar Jönsson (ICPerMed Chair) Gaetano Guglielmi (ICPerMed Secretariat, Italian Ministry of Health, Italy) Patrizio Giacomini (RCSS National Cancer Institute Regina Elena, Italy) Juergen Busch (Ludwig Boltzmann Gesellschaft, Austria) Sulev Reisberg (University of Tartu, Estonia) Mark A. Rubin (University of Bern, Switzerland) Video Presentations: ICPerMed “Best Practice in PM” Recognition 2019 Gaetano Guglielmi, Maria Grazia Mancini, Maria Josefina Ruiz Alvarez A Liquid Biopsy ‘hub’: integratingnano-technologies to improve cancerdiagnosis and therapy Patrizio Giacomini M.D. Establishment of Interdisciplinary & Inter-Sectoral Collaboration Platforms for the Implementation of Personalised Medicine through Open Innovation in Science Juergen Busch (LBG Vienna), Gertraud Leimueller (winnovationVienna), Lucia Malfent (LBG Vienna until Oct. 2019), Prof. Josef Niebauer (University Hospital Salzburg), Prof. Harald Willschke (Medical University Vienna) Translating genotype data of 44,000 biobank participants into clinical pharmacogenetic recommendations: challenges and solutions Dr. Sulev Reisberg Development and integration of organoid models in personalized medicine platforms (video presentation/MP4) Mark Rubin |
| Plenary Session 2.2 Objectives and working procedure of the Working Groups and introduction of their panels Jan-Ingvar Jönsson (ICPerMed Chair); Cristina Nieto (Institute of Health Carlos III, Spain) Video Presentation |
| Working Groups (4 parallel sessions) Personalised medicine: How to ensure awareness and empowerment for all citizen’s? Chair: Dr. Sabrina Montante (National Institute of Health of Italy/ ISS, Italy) Vice-chair: Dr. Marta Puyol (Spanish Association Against Cancer Scientific Foundation, AECC-FC, ES) Rapporteur: Dr. Terje Peetso (North Estonia Medical Centre/ NEMC, Estonia) Which are the Ethical, Legal and Social Implications (ELSI) of personalised medicine research and implementation? Chair: Prof. Dr. Ann Cambon-Thomsen (Inserm & University of Toulouse III, France) Vice-chair: Prof. Dr. Gaetano Guglielmi (Italian Ministry of Health, Italy) Rapporteur: Prof. Dr. Eva Winkler (University of Heidelberg, Germany) Transfer of research results into the market: How to optimise a safe, fast and economic process to implement personalised medicine approaches? Chair: Dr. Anna Rita Franco Migliaccio (University of Bologna, Italy) Vice-chair: Dr. Sebastian Delbrück (VDI/VDE Innovation + Technik GmbH, Germany) Rapporteur: Prof Fr. Jacques Demotes (ECRIN, France) Personalised medicine in the health system: How to ensure sustainability and an effective collaboration between all health care players as well as with prevention services? Chair: Prof Dr Avi Israeli (CSO, Ministry of Health, Israel) Vice-chair: Dr. Ricardo Pereira (Foundation for Science and Technology, Portugal) Rapporteur: Dr.Toni Andreu (EATRIS-ERIC, The Netherlands) |
| Plenary Session 3 Report on intermediate progress of each Working Group Astrid Vicente (ICPerMed Vice-chair); Wolfgang Ballensiefen (ICPerMed Vice-chair) Video Presentations: The ICPerMed Vision for 2030 – How can personalised approaches pave the way to next-generation medicine? Astrid Vicente,ICPerMed Vice-Chair Working Group Intermediate Results: Working Group I: Personalized medicine: How to ensure awarnessand empowerment for all citiziens? Working Group II: Which are the Ethical, Legal and SocialImplications (ELSI) of Personalised Medicine(PM) research and implementation? Working Group III: Transfer of research results into the market: How to optimise a safe, fast and economic process to implemen personalised medicine approaches? Working Group IV: Personalised medicine in the health system: How to ensure sustainability and an effective collaboration between all health care players as well aswith prevention services? |
| Plenary Session 4.1 Final report of each Working Group (outcomes and executive summary of key and other recommendations achieved) Jan-Ingvar Jönsson (ICPerMed Chair); Cristina Nieto (Institute of Health Carlos III, Spain) Video Presentations Working Group Final Reports Working Group I: Personalized medicine: How to ensure awarnessand empowerment for all citiziens? Working Group II: Which are the Ethical, Legal and SocialImplications (ELSI) of Personalised Medicine(PM) research and implementation? Working Group III: Transfer of research results into the market: How to optimise a safe, fast and economic process to implemen personalised medicine approaches? Working Group IV: Personalised medicine in the health system: How to ensure sustainability and an effective collaboration between all health care players as well aswith prevention services? Workshop Summary Dr. Ulrike Busshoff |
| Plenary Session 4.2 Wrap up & closing remarks Indridi Benediktsson (European Commission Representative) Raquel Yotti Alvarez (General Director Institute of Health Carlos III, Spain) Spanish Representative from the Minister of Health, Consumers and Wealthfare (TBC) (presentations & video see “Plenary session 4.1) |
The 2nd ICPerMed Workshop “Citizens, patients and implementation” was organised by the Spanish ICPerMed member ISCIII and took place from 5-6 November 2019 in Madrid.
There were high-level plenary sessions and four working groups. The working groups met in parallel and discussed the following topics:
- Personalised medicine: How to ensure awareness and empowerment for all citizens?
- Which are the Ethical, Legal and Social Implications (ELSI) of personalised medicine research and implementation?
- Transfer of research results into the market: How to optimise a safe, fast and economic process to implement personalised medicine approaches?
- Personalised medicine in the health system: How to ensure sustainability and an effective collaboration between all health care players as well as with prevention services?
Disclaimer:
On 5/6 November 2019, the DLR Project Management Agency took part in the ICPerMed Workshop 2019 ‘Citizens, patients and implementation’ as one of the organisers. In its function as editor of the website of the ‘ICPerMed International Consortium’, the DLR Project Management Agency agreed to upload the presentations held during this event to this website thus making them available for download in pdf format subject to the express consent of the speakers concerned. DLR, as the uploading entity, has not monitored the contents of these presentations in any way. In case of incorrect contents, copyright infringements or other violations of the law, please contact the ICPerMed Secretariat. Any offending material will be removed immediately.
