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    ICPerMed Workshop 01 | 2023 Pamplona

    Preparing the Future for Personalised Medicine: EP PerMed

    The goal of this workshop was to discuss with the different involved stakeholders three areas that are relevant for realising the full potential of a Personalised Medicine approach: research, innovation, and implementation. The aim was also to include other essential transversal aspects, such as the appropriate supporting framework including incentives, regulation, business models, regional and international perspectives, infrastructures and data access, patients and citizens engagement.

    The workshop allowed a broad range of experts to react and contribute to the continued work of developing a strategic research and innovation agenda (SRIA) for the future European Partnership for Personalised Medicine (EP PerMed). They gave input to key areas such as: whole innovation system; implementation system; education; involvement of industry, patients representatives, payers, providers.

    There were four sessions for discussions about the following topics:

    • Patient engagement and education
    • International and regional collaboration
    • The Personalised Medicine innovation system and industrial collaboration
    • Health system, providers, medical societies, payers and insurances

    Meeting start: January 17, 9:00 am

    Meeting end: January 18, 13:45

    Location: Navarra Conference Center, Pamplona, Spain

    The workshop was on invitation only.

    The workshop agenda can be downloaded here.

    Day 1

    Time schedule

    Topic

    09:00 - 09:30

    Registration

    9:30 - 10:00

    Welcome & Introduction

    Cristina Nieto (Host, National Health Institute Carlos III, ISCIII)
    Mikel Irujo (Host, Regional Minister for Economic and Business Development 
    of the Government of Navarre)
    Ejner Moltzen (Chair of ICPerMed, Innovation Fund Denmark)
    Carmen Laplaza Santos(European Commission)

    10:00 - 11:00

    ICPerMed 'Best Practice in Personalised Medicine' Recognition 2021-2022

    Chiara Ciccarelli (ICPerMed Secretariat, International Relations Officer, Italian Ministry of Health. On behalf of Gaetano Guglielmi). Moderator
    Dr Mario Alberto Battaglia, “Databases and registers toward Barcoding Multiple Sclerosis”. Italy
    Download presentation
    Dr Annalisa Trama, “The first international federated clinical registry on rare head and neck cancers”. Italy
    Download presentation
    Dr Julia Stingl, “Data sharing and re-use in the framework of the ArtiPro ERA PerMed project”. Germany
    Download presentation
    Dr Ludmilla Thomé Domingos Chinen, “A higher platelet-to-lymphocyte ratio is prevalent in the presence of circulating tumor microemboli and is a potential prognostic factor for non-metastatic colon cancer”. Brazil
    Download presentation

    11:00 - 11:30

    Coffee break

    11:35 - 11:55

    Introduction to EP PerMed 

    Wolfgang Ballensiefen (EP PerMed Chair, DLR)
    Download presentation

    11:55 - 12:15

    EP PerMed Strategic Research and Innovation Agenda (SRIA) and Draft 
    Proposal Presentation

    Monika Frenzel (EP PerMed co-Chair, ANR)
    Download presentation

    12:15 - 13:30

    1st Plenary session: Patient and Citizen Engagement and Education

    Moderation: Maria Jose Ruiz Alvarez, Italian Ministry of Health
    Marius Geantă, Centre for Innovation in Medicine
    Larisa Aragón Castro, National Data Stream (NDS) Consortia
    Nathalie Lambrechts, Biomedical Research at VITO
    Merel Hennink, FT3

    13:30 - 14:30

    		 Lunch break

    14:30 - 15:00

    Best Practice of Overcoming Personalised Medicine Implementation Barriers 

    Alberto Ortiz, co-funded ERA-PerMed Project 2018 Call “Multidimensional 
    stratification for treatment of acute kidney injury - Kidney Attack Project”
    (Health Research Institute of Jiménez Díaz Foundation IIS-3FJD)
    Download presentation

    Violeta Serra, funded by ERA-PerMed, Joint Transnational Call 2019 “Patient 
    stratification based on DNA repair functionality for cancer precision medicine -
    RAD51 Predict Project” (Vall d’ Hebron Institute of Oncology)
    Download presentation

    15:30  - 16:45

    2nd Plenary session: Key Areas: International and Regional Perspectives of Personalised Medicine

    Moderation: Monika Frenzel, ANR
    Gianni D'Errico, Tuscany Life Sciences
    Kathleen D'Hondt, Flemish Government
    Joaquín Guinea, InnovaTec
    Étienne Richer, IRSC | CIHR Institute of Genetics
    Maria Jose Ruiz Alvarez, Italian Ministry of Health
    Ángel Alonso Sánchez, Navarrabiome

    16:45 - 17:15

    Coffee break

    17:15 - 17:35

    Conclusions of the discussions on Plenary Sessions

    Maria Jose Ruiz Alvarez (Italian Ministry of Health) & Monika Frenzel (ANR)

    20:30

    Dinner. El Mercao Restaurant

    Day 2

    Time schedule

    Topic

    08:30 - 09:00

    Key-note lecture of a Personalised Medicine expert in the local community (Region of Navarra)

    Gonzalo Rodríguez, a representative of Navarra Health Cluster
    Download presentation

    9:00 - 10:15

    3rd Plenary session: Innovation System and Industrial Collaboration

    Moderation: Ejner Moltzen (Chair of ICPerMed, Innovation Fund Denmark)
    Jean-Marc Bourez, EIT Health
    Nathalie Seigneuret, IHI Europe
    Niklas Blomberg, ELIXIR
    Nataša Debeljak, University of Ljubljana
    Jens Habermann, BBMRI-ERIC
    Maria Orr, AstraZeneca
    Ralf Herold and Andrew Thomson, EMA

    10:15 - 10:45

    Coffee break

    10:45 - 12:00

    4th Plenary session: Health Systems Providers, Payers, Insurances and 
    Medical Societies

    Moderation: Hemma Bauer, Austrain Ministry of Education, Science and 
    Research
    Astrid Vicente, National Health Institute Doutor Ricardo Jorge
    Toni Andreu, EATRIS
    Paula García, ECRIN
    Ramiro Gilardino, Global Health Technology Assessment Policy Lead. 
    Pharmaceutical Executive.
    Terje Peetso, North Estonia Medical Centre
    Juan José Beloqui, PharmaNAGEN Coordinator, Navarrabiomed
    Vanessa Terzo, Italian Ministry of Health

    12:00 - 12:15

    Conclusions of the discussions on Plenary Sessions

    Ejner Moltzen (Chair of ICPerMed, Innovation Fund Denmark) & Hemma Bauer 
    (Austrian Ministry of Education, Science and Research)

    12:15 - 12:25

    Contributions for the planned proposal of EP PerMed

    Monika Frenzel (EP PerMed co-Chair, ANR)

    12:25 - 12:30

    Wrap up & closing remarks

    Ejner Moltzen (ICPerMed Chair, Innovation Fund Denmark)
    Wolfgang Ballensiefen (EP PerMed Chair, DLR)
    Cristina Nieto (Host, ISCIII)

     

    12:30 - 13:00

    		 Lunch break

    13:00 - 15:30

    EP PerMed Preparatory Group meeting (internal)