Videos and presentations of the ICPerMed Conference 2018 'Personalised Medicine in Action'

20th November 2018 & 21st November 2018
dbb forum, Friedrichstraße 169, 10117 Berlin

 

1st Day (20.11.2018, Tuesday)

Welcome and Introduction

Sabine Weiss, Parliamentary State Secretary to the Federal Minister of Health (BMG), Germany
Veronika von Messling, Director General Life Sciences, Federal Ministry of Education and Research (BMBF), Germany

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Opening Statement

Wolfgang Burtscher, Deputy Director-General - Directorate "Research and Innovation" (RTD), European Commission
Marco Marsella, Head of the eHealth, Well-Being and Ageing Unit, Directorate General for Communications Networks, Content and Technology, European Commission
Marian Harkin, Member of the European Parliament (written statement), Ireland
Cristian Busoi, Member of the European Parliament (video statement), Romania

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Introduction to ICPerMed

Mairead O'Driscoll, ICPerMed Chair, Health Research Board (HRB), Ireland

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Keynote 1: Personalised Medicine and Health Economics - The Art of Defining Benefit for Individuals and Society

Katherine Payne, University of Manchester, United Kingdom

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1st Best Practice Example of Personalised Medicine Research & Implementation - From Basic Research to the Patient: The Network Genomic Medicine in Germany - Implementing Personalised Lung Cancer Care in Clinical Routine

Introduction and Moderation: Jürgen Wolf, University Hospital Cologne, Germany

The genomic approach: Roman Thomas, University of Cologne, Germany
High-end molecular diagnostics: Reinhard Büttner, University Hospital Cologne, Germany
Innovative clinical trials: Sebastian Michels, University Hospital Cologne, Germany
Data management & IT strategy: Jürgen Wolf, University Hospital Cologne, Germany
Organization of the network: Anna Kron, University Hospital Cologne, Germany
The referring doctor's perspective: Achim Rothe, Medical Oncologist,  Germany
The patient's perspective: Bärbel Söhlke, Patient, Germany
The payer's perspective: Gerhard Schillinger, AOK Bundesverband, Germany

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ICPerMed Survey and Database

Monika Frenzel, ICPerMed Secretariat, French National Research Agency (ANR), France

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2nd Best Practice Example of Personalised Medicine Research & Implementation - From Basic Research to the Patient: Genomic Medicine Sweden (GMS) - Acceleration of Implementation of Personalised Medicine for Rare Diseases and Cancer

Introduction and Moderation: Jan-Ingvar Jönsson, Swedish Research Council, Sweden

The policy perspective: Jenni Nordborg, National Coordinator Office for Life Science, Sweden
The patient’s perspective: Fabian Bolin, CEO & Co-founder, WarOnCancer AB and Sebastian Hermelin, COO & Co-founder, WarOnCancer AB, Sweden
The company’s perspective: Joachim Reischl, AstraZeneca, Sweden
Genomics Medicine Sweden (GMS): Richard Rosenquist, Head of GMS, Sweden
Clinical implementation of GMS: Anna Wedell, Karolinska University Hospital, Sweden

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1st Best Practice Example of Personalised Medicine Policy: The Canadian Path from Discovery to Implementation of Personalised Medicine Approaches

Etienne Richer, Canadian Institutes of Health Research (CIHR), Canada

Catalina Lopez-Correa, Genome British Columbia, Canada

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Keynote 2: Clinical Implementation – Challenges and Solution Strategies

Daryl Pritchard, Personalized Medicine Coalition (PMC), United States of America

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Public-public Partnerships for Research in Personalised Medicine, ERA-PerMed

Rafael de Andrés Medina, The National Institute of Health Carlos III (ISCIII), Spain

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2nd Best Practice Example of Personalised Medicine Policy: Personalised Approaches of the Portuguese Adverse Drug Reaction System

Miguel Antunes, National Authority of Medicines and Health Products (INFARMED), Portugal

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2nd Day (21.11.2018, Wednesday)

Keynote 3: Precision Medicine: From patient need to providing solutions in clinical practise

Thorsten Gutjahr, AstraZeneca, United Kingdom

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3rd Best Practice Example of Personalised Medicine Policy: TOPMed10 - Training the Next Generation of Leaders in Personalised Medicine.

Walter Kolch, Systems Biology Ireland

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ICPerMed Best Practice Award

Introduction and Moderation: Gaetano Guglielmi, ICPerMed Secretariat, Italian Ministry of Health, Italy

NAGEN 1000: An example of a Project for Regional Implementation of Personalised Genomic Medicine in Healthcare
Angel Alonso, Navarrabiomed, Spain

Proposal of Reccomendations for a National Strategy on personalized Medicine Report
Consuelo Martin de Dios, Fundación Instituto Roche, Spain

In vivo evidence for ribavirin-induced mutagenesis of the hepatitis E virus genome
Daniel Todt, Ruhr-University Bochum, Germany

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3rd Best Practice Example of Personalised Medicine Research & Implementation - From Basic Research to the Patient: Translational medicine in familial Hypercholesterolaemia – from Phenotype to Genotype to Treatment

Introduction and Moderation: Mafalda Bourbon and João Lavinha, INSA, Portugal

Mechanism of Diseases and Research Effort: Mafalda Bourbon, INSA, Portugal
Clinical approach and Health System Implementation: Eric Sijbrands, Erasmus Medical Centre, Netherlands
Market Access and Precision Medicine in FH: Steve Humphries, Store Gene, United Kingdom
Health System Implementation: Eric Sijbrands, Erasmus Medical Centre, Netherlands
Patient benefit: Gabriele Hanauer-Mader, FH Austria, Austria
Ethical, Legal and Social Implications: João Lavinha, INSA, Portugal

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Keynote 4: International view of Personalised Medicine

The Chinese perspective: Cong Yu, BGI Group, China

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Conclusions and Outlook

Mairead O'Driscoll, ICPerMed Chair, Health Research Board (HRB), Ireland

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