---- Update 13 March 2020: Due to a situation of "force majeure" and international travel policies associated with the Covid-19 outbreak the congress is posponed to the first months in 2021 ----

The joint event aims to bring together scientific leaders, experts and young scientists to present cutting-edge research, exchange ideas, and discuss policies related to rare diseases research. Patients and patient organizations that are committed to research will also attend to share their experiences and perspectives.

For more information, please visit the event website.