Paris at dawn

2nd ICPerMed Conference “Personalised Medicine – From Vision to Practice” 25-26 February 2021

The conference will comprise keynote lectures focusing on the implementation of personalised medicine approaches into healthcare systems for the benefit of patients, citizens and the society as a whole.

Programme of the Conference (PDF)

Five plenary sessions will focus on the five perspectives of the Vision Paper: citizen engagement, involvement of health professionals, implementation within healthcare systems, health-related information, and the development of sustainable economic models covering the entire spectrum of personalised medicine.

Each session will include two talks and a panel discussion to widen the session’s perspective with other expertises.

You can access the virtual space dedicated to the conference with the following link.

1st DAY

Welcome & Opening Statements

13:00 - 14:20

Welcome and Introduction: 
Thierry Damerval, Chief Executive Officer of the French National Research Agency (ANR)
Irene Norstedt, Director for the People Directorate - Directorate "Research and Innovation" (RTD), European Commission
Ejner Moltzen, Innovation Fund Denmark, Chair of ICPerMed
Eduardo Cazap, Latin American & Caribbean Society of Medical Oncology SLACOM, Scientific Committee

SESSION: Informed and engaged citizens - personalised medicine for the individual and society

Through this session, it will be discuss how and when to include patient perspectives in the development life cycle of personalised medicals, prevention, products and interventions. The session will show the opportunities, benefits and barriers of patient empowerment in healthcare, research activities or policy development. The session will show the importance of the patient’s role to provide an overarching perspective and first-hand experience on what it is like to live with a disease, and by doing that, ensuring that interventions truly respond to patient needs and priorities. Conversely, due to the complexity of PM, it is challenging to engage patients and citizens. A focus will be made on the data integration and management as well as on education and training that are required to allow patients and patient organisations to contribute to research and to disseminate health-related information through their communities.

14:20 - 14:25 Introduction by Dr. Mette Hartlev & David Haerry
14:25 - 14:45 Bettina Ryll
Horizon Europe Cancer Mission Board and Melanoma Patient Network Europe, Sweden
14:45 - 15:05 Barbara Prainsack
Department of Political Science, University of Vienna, Austria
15:05 - 15:45 Panel Discussion for Session 1:
Bettina Ryll
Barbara Prainsack
Peter Goodhand
, CEO Global Alliance for Genomics and Health (GA4GH), Canada
Larry Norton, Memorial Sloan Kettering Cancer Center, USA
15:45 - 15:55 Coffee Break

SESSION: Enhancing life science- and health-related data through biomedical research, data harmonisation and regulatory frameworks

Data and data analytics are basic pillars of PM. Handling and interoperating large heterogeneous data sets represent a conceptual and technical challenge, including issues of data protection and security, infrastructure and computational resources, as well as the need of making data and data interpretation accessible to a diversity of end-users from patients and scientist to medical doctors. Data infrastructure and technical solutions will be presented on how to allow access to biomedical and medical data and how to achieve the integration of data sources of disparate nature.

15:55 - 16:00 Introduction by Dr. Alfonso Valencia
16:00 - 16:20 Peter Goodhand
CEO Global Alliance for Genomics and Health (GA4GH), Canada
16:20 - 16:40 Søren Brunak
Novo Nordisk Foundation Center for Protein Research at the University of Copenhagen, Denmark
16:40 - 17:20 Panel Discussion for Session 2:
Peter Goodhand
Søren Brunak
Barbara Prainsack
, Department of Political Science, University of Vienna, Austria
Ernst Hafen, ETH Zurich, Switzerland
17:20 - 17:30 Coffee Break

SESSION: Enabling healthcare systems to implement the next generation of medicine: a crucial shift

The implementation of PM is a paradigm shift for our current healthcare systems and will require a switch from a system focusing on treating diseases to a system ensuring that appropriate preventive measures are set in place, that early diagnosis is made or optimal therapies are selected. This session will provide an insight from a public health expert view on the design, implementation and evaluation of healthcare system reforms and on how to facilitate and guarantee an equitable access to personalised healthcare for all citizens. The session will furthermore demonstrate how genomics and technologies are changing the practice of medicine and public health improving health population and disease prevention.

17:30 - 17:35 Introduction by Prof. Eduardo Cazap
17:35 - 17:55 Rifat Atun
Harvard University, USA
17:55 - 18:15 Andres Metspalu
Estonian Biobank, Estonian Genome Center, Institute of Genomics, University of Tartu, Estonia
18:15 - 18:55 Panel Discussion for Session 3:
Rifat Atun
Andres Metspalu

Rizwana Mia, South African Medical Research Council, South Africa
Anil D’Cruz, President of UICC, Director of Oncology at Apollo Hospitals, India


2nd DAY

SESSION: ICPerMed Recognition

ICPerMed features and honours in this session best practices in personalised medicine research through the ICPerMed Recognition 2020, that aims to recognise, encourage, promote and disseminate outstanding examples. The third ICPerMed Recognition edition was open to candidates worldwide, who have published scientific papers or developed best practice strategies in the field of personalised medicine between 1st January 2018 and 31st October 2019. The winners will present their results during this session.

13:00 - 13:10 Opening
13:10 - 14:10

Introduction and Moderation
Gaetano Guglielmi, ICPerMed Secretariat, Italian Ministry of Health, Italy

A pathology-supported genetic testing platform for application of breast cancer pharmacogenetics at the point of care (POC) using an integrated service and research approach
Maritha Kotze, Department of Pathology, Stellenbosch University and National Health Laboratory Service - NHLS- Tygerberg Hospital, South Africa

A combined ANXA2-NDRG1-STAT1 gene signature predicts response to chemoradiotherapy in cervical cancer
Daniela Gallo, Sacro Cuore Cattolica University, Italy

The Personalised Medicine Coalition: Developing Strategies for the Integration of Personalised Medicine in Health Care Practice
Daryl Pritchard, Science Policy at PMC, USA

International Tinnitus Research – Novel approaches in Personalised Medicine Research, Teaching and Treatment - The ESIT Project
Winfried Schlee, European School on Interdisciplinary Tinnitus Research (ESIT) Consortium

14:10 - 14:20 Coffee break

SESSION: Building an efficient entrepreneurial ecosystem supporting health innovation

This session will focus on the importance to bridge the gap between research and innovation based on a better cooperation between academia and industry. Solutions will be presented on how the transfer of clinical and biomedical research to routine healthcare can be facilitated and organised through an ecosystem supporting partnerships and collaborations. Additionally, the session will show how medical education will improve collaboration and research through mutual understanding and allow a better and more complete flow of information in translating biomedical discoveries into clinical practices.

14:20 - 14:25 Introduction by Dr. André Albergaria & Dr. Salah Dine Chibout
14:25 - 14:45 Vjera Magdalenic-Moussavi
Director of Industry Partnerships and Commercialisation, Medicine at Imperial College London, UK
14:45 - 15:05 Magda Chlebus
Executive Director for Science Policy and Regulatory Affairs of The European Federation of Pharmaceutical Industries and Associations (EFPIA), Belgium
15:05 - 15:45 Panel Discussion for Session 4:
Vjera Magdalenic-Moussavi
Magda Chlebus
Fabrice André, Gustave Roussy, France
Aurélie Greinenberger, Eligo Bioscience, France
15:45 - 15:55 Coffee break

SESSION: Personalised medicine, an opportunity to redefine value in healthcare by incorporating patient preference and socio-economics aspects

Healthcare systems face rising costs due to technological developments, increasing number of patients with chronic diseases and expensive PM treatments. Additionally, healthcare systems should be based on solidarity and guarantee an equitable access to care. The session will show novel approaches to value assessment beyond conventional cost-effectiveness analysis and centred on patient preferences. As the notion of value still differs between citizens, patients, healthcare providers, health professional, industry but also healthcare systems, it is necessary to define a comprehensive meaning of value. The session will welcome health economists and national authorities to provide insight on how PM will be valued in future healthcare systems on emerging issues as access, costs, prices and reimbursement.

15:55 - 16:00 Introduction by David Haerry
16:00 - 16:20 Axel Mühlbacher
Institute for Health Economics and Health Care Management, Hochschule Neubrandenburg, Germany & Duke University, USA
16:20 - 16:40 Wiebke Löbker
Head of Unit Innovation, Change management / Personal advisor to the president of the BfArM Federal Institute for Drugs and Medical Devices, Germany, Coordinator of the EU funded Coordination and Support Action on Strengthening Training of Academia in Regulatory Science (CSA STARS)
16:40 - 17:20 Panel Discussion for Session 5:
Axel Mühlbacher
Wiebke Löbker
Serena Scollen, ELIXIR
17:20 - 17:30 Coffee Break
17:30 - 18:30 The Challenges to a Personalised Medicine Approach for infectious diseases – Lessons learned from the COVID-19 pandemic
Moderation by Eric Solary
Alberto Mantovani, Istituto Clinico Humanitas
Guy Cochrane, EMBL-EBI, European Open Science Cloud, European COVID-19 Data platform
Oliver Cornely, University Hospital Cologne, Germany
Jacques Fellay, CHUV & EPFL, Switzerland
18:30 - 18:45 Conclusion and Outlook (~15’), chair/s and/or hosts and the Scientific Committee
Latest 19:00 End of the Meeting


Further information about the programme:

In addition to the above mentioned programme, ICPerMed will feature and honour in a dedicated session best practices in personalised medicine research through the ICPerMed Recognition 2020, that aims to recognise, encourage, promote and disseminate outstanding examples.