- Rifat Atun
- Søren Brunak
- Magda Chlebus
- Peter Goodhand
- Wiebke Löbker
- Vjera Magdalenic-Moussavi
- Andres Metspalu
- Axel Mühlbacher
- Barbara Prainsack
- Bettina Ryll
Harvard University, United States of America
Dr. Atun is Professor of Global Health Systems at Harvard University and the Faculty Chair of the Harvard Ministerial Leadership Program. In 2008-12 he served as a member of the Executive Management Team of the Global Fund as Director of Strategy, Performance and Evaluation where he chaired the panel that oversaw annual investments of ~US$3-4 billion. In 2006-2013 he was a Professor of International Health Management at Imperial College London, where he led the Centre for Health Management and was involved as founder, adviser and investor in several biotech and health technology companies. He is a visiting professor at University of Kyoto, Japan. Professor Atun’s research focuses on health system transformation, and innovation. He has published over 350 papers in leading journals. Prof Atun has advised more than 30 governments on health policy and health system reform, and has worked with the World Bank, WHO and leading organizations such as Medtronic, Novartis, Roche, and Merck & Co.
University of Copenhagen Medical School, Denmark
Søren Brunak is a leading expert in bioinformatics, systems biology, and medical informatics through invention and introduction of new computational strategies for analysis and integration of biological and clinical data. His group at the University of Copenhagen Medical School is named “Translational Disease Systems Biology” and aims at obtaining mechanistic understanding of disease as well as producing new patient stratification, risk prediction and treatment selection principles. The use of the patient trajectory concept is a major theme that exploits information on the patient-past in terms of prior diseases, comorbidities, prescriptions, lab values, genetics, wearable data, socio-economic data among other types of data.
The European Federation of Pharmaceutical Industries and Associations (EFPIA), Belgium
Magda Chlebus is Executive Director Scientific & Regulatory Affairs at the European Federation of Pharmaceutical Industries and Associations (EFPIA), representing the R&D-based pharmaceutical industry in Europe. Magda and her team are in charge of following policy and legislative developments that influence the research and regulatory environments for the healthcare industry in Europe. This includes public private collaborations (inter alia the Innovative Medicines Initiative), enabling and sensitive technologies and the interface between new science and technology and regulation. She joined EFPIA in 1995. Her experience covers public and government affairs mainly at EU level, on a range of legislative and non-legislative files in the area of research, development and access to medicines and enabling technologies. Magda, a Polish national, holds a Master Degree in Applied Linguistics from the University of Warsaw.
The Global Alliance for Genomics and Health (GA4GH), Canada
Peter Goodhand is a leader in the global health sector, holding senior executive and board member positions in the health research advancement community. Mr. Goodhand played a key role in the creation of the Global Alliance for Genomics and Health (GA4GH) to accelerate progress in genomic research and medicine. In 2018, he was appointed Chief Executive Officer to reflect the changing responsibilities associated with leading a growing organization with an ambitious strategic roadmap. Mr. Goodhand spent two years as President of the Ontario Institute for Cancer Research (OICR) between 2016 - 2018. He was the President and CEO of the Canadian Cancer Society - Canada’s largest health charity. Before joining the charitable sector, Goodhand had a 20 year career in the global medical technology industry, including strategic leadership roles with multinational healthcare companies such as American Cyanamid and Johnson & Johnson and as the founding Managing Director of the Health Technology Exchange (HTX). Goodhand is currently Co-Chair of the Medical and Scientific Advisory Board of Global Genes, Co-Chair of the International 100K+ Cohorts Consortium (IHCC), member of the Global Genomic Medicine Collaboration (G2MC) Steering Committee, member of the Ethical and Scientific Advisory Board of EUCANCan, board director of Rare X, member of advisory committee for the Secure Platform for Health and Genomics, a member of the Advisory Committee for Genome Canada’s All for One rare disease initiative and a member of the Occupational Cancer Research Centre Steering Committee. Mr. Goodhand also had a 12-year experience as a patient advocate, caregiver and navigator throughout his family’s battle with a rare cancer.
BfArM Federal Institute for Drugs and Medical Devices, Germany
Dr. Wiebke Löbker, pharmacist with further education in the field of medication information, she is the Head of Unit Innovation, Change management / Personal advisor to the president of the BfArM Federal Institute for Drugs and Medical Devices, Germany. The BfArM is an independent federal higher authority responsible for licensing, improving the safety of medicinal products, detecting and evaluating the risks of medical devices, and monitoring the legal traffic in narcotic drugs. The most important aim of these activities is to increase the safety of medicinal products and thus that of the patients. She is also the BfArM´s representative at the EU-Innovation Network and the Coordinator of the EU funded Coordination and Support Action on Strengthening Training of Academia in Regulatory Science (CSA STARS).
Industry Partnerships and Commercialisation, Medicine at Imperial College London, United Kingdom
Vjera is the Head of Corporate Partnerships for the Faculty of Medicine where she leads the development and management of strategic research collaborations with the healthcare industry with a particular emphasis on building multidisciplinary programmes. Vjera is responsible in supporting the Faculty research strategy by developing and growing industrial engagement of the NIHR funded Imperial BRC College (Biomedical Research Centre) and its related facilities at Imperial College. She also supports growing the relationship with Medcity on behalf of the Faculty. Additionally, she leads the industrial engagement for the Imperial Confidence in Concept portfolio of translational projects. She has College-wide relationship management responsibility for a number of Corporate Partners in the healthcare sector including Pfizer, GSK, AstraZeneca Nestlé and others. She has led the establishment of a number of strategic partnerships with these and continues to work with the Corporate Partners to expand their research and educational engagement with Imperial. Internally, Vjera continues to grow the Corporate Partnerships Medicine team engagement and departmental in-reach with the particular focus on assisting early career researchers in their industrial engagements.
Estonian Biobank, Estonian Genome Center, Institute of Genomics, University of Tartu, Estonia
Prof. Andres Metspalu, (MD 1976, PhD 1979) Head of the Estonian Biobank, Institute of Genomics, University of Tartu. He was a postdoc at Colombia and Yale University in 1981-1982. His main scientific interests are human genetics (1985 EMBL, 1987 MPI West Berlin)), genomics of complex diseases and population based biobanks and application of the precision medicine in health care, 1993-1994 at BCM, Houston, as a visiting faculty and year 2000 at IARC, Lyon, France as a recipient of the International VSS Award and in 2012 sabbatical at University of Lausanne. From 1996 to 2008 A. Metspalu was also the head and founder of the MD Center of the Tartu University Hospital. Metspalu is the past (2006) president of the European Society of the Human Genetics. 2010 he was elected to the Estonian Academy of Sciences and in 2019 he was nominated as a “Estonian European of the Year” Award. His H-index is 115. He is serving in several national (MSC of Estonian Personal Medicine Project) and international committees (Board member of Mission for Cancer in Horizon Europe) and has received among other awards and honors the Order of the Estonian Red Cross 3rd Class and L’Ordre des Palmes Academiques from the Republic of France. From 2010, he is Doctor Honoris Causa of Vilnius University.
Hochschule Neubrandenburg, Germany
Axel Mühlbacher is professor of health economics and health care management at Hochschule Neubrandenburg. As a secondary appointment he is an adjunct professor in the Duke Department of Population Health Sciences, and a CHPIR Senior Research Fellow in the Center for Health Policy and Inequalities Research at the Duke Global Health Institute, Duke University (USA). He serves as a member of the scientific advisory board of the Institute for Quality Assurance and Transparency in Healthcare (IQTiG) and a board member and chair of the International Academy of Health Preference Research (IAHPR). He currently serves as associate editor of Value in Health and on the editorial advisory board of the Journal of Choice Modelling (JOCM), PharmacoEconomics, Int. Journal of Integrated Care (IJIC) and The Patient – Patient Centered Outcomes Research. Axel Mühlbacher is author of several books and more than 100 peer-reviewed articles.
Department of Political Science, University of Vienna, Austria
Barbara Prainsack is a Professor at the Department of Political Science at the University of Vienna, where she directs the Centre for the Study of Contemporary Solidarity (CeSCoS), and the interdisciplinary Research Platform Governance of Digital Practices. Her work explores the social, regulatory and ethical dimensions of biomedicine and bioscience, with a focus on personalised and “precision” medicine, citizen participation, and the role of solidarity in medicine and healthcare (most recent book: Personalized Medicine: Empowered Patients in the 21st Century?, NYU Press, 2017). Barbara is also a member of the Austrian National Bioethics Committee and of the European Group on Ethics in Science and New Technologies advising the European Commission, and she chaired the European Science Foundation’s (ESF) Forward Look on Personalised Medicine for the European Citizen (2011-2012, with Stephen Holgate and Aarno Palotie). She is also a member of the British Royal Society of Arts, an elected foreign member of the Danish Royal Academy of Sciences and Letters, and an elected member of the Academia Europaea (AE). She is an affiliate of the Centre de recherche en éthique (CRE), University of Montreal, Canada, and of the Centre for Health, Law, and Emerging Technologies (HeLEX) at the University of Oxford.
Horizon Europe Cancer Mission Board and Melanoma Patient Network Europe, Sweden
Dr. Ryll holds a medical degree from the Free University of Berlin, Germany, and a PhD in Biomedical Sciences from University College London, UK. After losing her husband to Melanoma, she founded the Melanoma Patient Network Europe and developed a special interest in patient-centric clinical research, innovative trial designs and novel drug development concepts as well as pragmatic solutions on how to ensure access to innovative treatments in situations of both high unmet need as well as high uncertainty. Between 2015 and 2018, Dr. Ryll chaired the ESMO-PAWG, the first time this position was held by a non-oncologist and was instrumental behind the development of the advocacy track at annual ESMO conferences and joined the Horizon Europe Mission Board for Cancer in 2019. Dr. Ryll is involved in numerous initiatives promoting evidence-based advocacy. She is fascinated by the enormous potential and capacity of patient networks to both educate and support patients as well as to capture data at the primary data source, the patients themselves, to generate evidence at a granularity level non-accessible to outsiders.