Madrid

ICPerMed Workshop 2019

The 2nd ICPerMed Workshop "Citizens, patients and implementation" was organised by the Spanish ICPerMed member ISCIII and took place from 5-6 November 2019 in Madrid.

There were high-level plenary sessions and four working groups. The working groups met in parallel and discussed the following topics:

  1. Personalised medicine: How to ensure awareness and empowerment for all citizens?
  2. Which are the Ethical, Legal and Social Implications (ELSI) of personalised medicine research and implementation?
  3. Transfer of research results into the market: How to optimise a safe, fast and economic process to implement personalised medicine approaches?
  4. Personalised medicine in the health system: How to ensure sustainability and an effective collaboration between all health care players as well as with prevention services?

Please see our press release for further details.

Agenda

Plenary Session 1.1 – Welcome & Introduction
Jan-Ingvar Jönsson (ICPerMed Chair)
Carmen Laplaza Santos (European Commission Representative)
Raquel Yotti Alvarez (General Director Institute of Health Carlos III, Spain)
Pedro Duque (Minister of Science, Innovation and Universities of the Government of Spain)

Presentations & Video

Plenary Session 1.2 – keynote lectures
Strategic challenge on the sustainable implementation of Personalised Medicine Research & Innovation outcomes:
Liisa-Maria Voipio-Pulkki, MD, PhD (Director General & Chief Medical Officer, Ministry of Social Affairs and Health, Finland)
GDRP in Personalised Medicine Research & Implementation
Claire Gayrel, PhD (Legal Officer, European Data Protection Supervisor, Belgium)

Presentations & Video

Plenary Session 2.1
ICPerMed 'Best Practice in Personalised Medicine' Recognition 2019 – award ceremony and oral presentations of awardees
Jan-Ingvar Jönsson (ICPerMed Chair)
Gaetano Guglielmi (ICPerMed Secretariat, Italian Ministry of Health, Italy)

Patrizio Giacomini (RCSS National Cancer Institute Regina Elena, Italy)
Juergen Busch (Ludwig Boltzmann Gesellschaft, Austria)
Sulev Reisberg (University of Tartu, Estonia)
Mark A. Rubin (University of Bern, Switzerland)

Presentations & Video

Plenary Session 2.2
Objectives and working procedure of the Working Groups and introduction of their panels
Jan-Ingvar Jönsson (ICPerMed Chair); Cristina Nieto (Institute of Health Carlos III, Spain)

Presentation & Video

Working Groups (4 parallel sessions)
  1. Personalised medicine: How to ensure awareness and empowerment for all citizen's?
    Chair: Dr. Sabrina Montante (National Institute of Health of Italy/ ISS, Italy)
    Vice-chair: Dr. Marta Puyol (Spanish Association Against Cancer Scientific Foundation, AECC-FC, ES)
    Rapporteur: Dr. Terje Peetso (North Estonia Medical Centre/ NEMC, Estonia)
  2. Which are the Ethical, Legal and Social Implications (ELSI) of personalised medicine research and implementation?
    Chair: Prof. Dr.  Ann Cambon-Thomsen (Inserm & University of Toulouse III, France)
    Vice-chair: Prof. Dr. Gaetano Guglielmi (Italian Ministry of Health, Italy)
    Rapporteur: Prof. Dr. Eva Winkler (University of Heidelberg, Germany)
  3. Transfer of research results into the market: How to optimise a safe, fast and economic process to implement personalised medicine approaches?
    Chair: Dr. Anna Rita Franco Migliaccio (University of Bologna, Italy)
    Vice-chair: Dr. Sebastian Delbrück (VDI/VDE Innovation + Technik GmbH, Germany)
    Rapporteur: Prof Fr. Jacques Demotes (ECRIN, France)
  4. Personalised medicine in the health system: How to ensure sustainability and an effective collaboration between all health care players as well as with prevention services?
    Chair: Prof Dr Avi Israeli (CSO, Ministry of Health, Israel)
    Vice-chair: Dr. Ricardo Pereira (Foundation for Science and Technology, Portugal)
    Rapporteur: Dr.Toni Andreu (EATRIS-ERIC, The Netherlands)

Plenary Session 3
Report on intermediate progress of each Working Group
Astrid Vicente (ICPerMed Vice-chair); Wolfgang Ballensiefen (ICPerMed Vice-chair)

Presentations & Video

Plenary Session 4.1
Final report of each Working Group (outcomes and executive summary of key and other recommendations achieved)
Jan-Ingvar Jönsson (ICPerMed Chair); Cristina Nieto (Institute of Health Carlos III, Spain)

Presentation & Video

Plenary Session 4.2
Wrap up & closing remarks
Indridi Benediktsson (European Commission Representative)
Raquel Yotti Alvarez (General Director Institute of Health Carlos III, Spain)
Spanish Representative from the Minister of Health, Consumers and Wealthfare (TBC)

Presentation & Video

 


Disclaimer:
On 5/6 November 2019, the DLR Project Management Agency took part in the ICPerMed Workshop 2019 'Citizens, patients and implementation' as one of the organisers. In its function as editor of the website of the 'ICPerMed International Consortium', the DLR Project Management Agency agreed to upload the presentations held during this event to this website thus making them available for download in pdf format subject to the express consent of the speakers concerned. DLR, as the uploading entity, has not monitored the contents of these presentations in any way. In case of incorrect contents, copyright infringements or other violations of the law, please contact the ICPerMed Secretariat. Any offending material will be removed immediately.