Panorama photo pamplona

ICPerMed Workshop 01 | 2023 Pamplona

Preparing the Future for Personalised Medicine: EP PerMed

The goal of this workshop was to discuss with the different involved stakeholders three areas that are relevant for realising the full potential of a Personalised Medicine approach: research, innovation, and implementation. The aim was also to include other essential transversal aspects, such as the appropriate supporting framework including incentives, regulation, business models, regional and international perspectives, infrastructures and data access, patients and citizens engagement.

The workshop allowed a broad range of experts to react and contribute to the continued work of developing a strategic research and innovation agenda (SRIA) for the future European Partnership for Personalised Medicine (EP PerMed). They gave input to key areas such as: whole innovation system; implementation system; education; involvement of industry, patients representatives, payers, providers.

There were four sessions for discussions about the following topics:

  • Patient engagement and education
  • International and regional collaboration
  • The Personalised Medicine innovation system and industrial collaboration
  • Health system, providers, medical societies, payers and insurances

Meeting start: January 17, 9:00 am

Meeting end: January 18, 13:45

Location: Navarra Conference Center, Pamplona, Spain

The workshop was on invitation only.

The workshop agenda can be downloaded here.

Day 1

Time schedule


09:00 - 09:30


9:30 - 10:00

Welcome & Introduction

Cristina Nieto (Host, National Health Institute Carlos III, ISCIII)
Mikel Irujo (Host, Regional Minister for Economic and Business Development 
of the Government of Navarre)
Ejner Moltzen (Chair of ICPerMed, Innovation Fund Denmark)
Carmen Laplaza Santos(European Commission)

10:00 - 11:00

ICPerMed 'Best Practice in Personalised Medicine' Recognition 2021-2022

Chiara Ciccarelli (ICPerMed Secretariat, International Relations Officer, Italian Ministry of Health. On behalf of Gaetano Guglielmi). Moderator
Dr Mario Alberto Battaglia, “Databases and registers toward Barcoding Multiple Sclerosis”. Italy
Download presentation
Dr Annalisa Trama, “The first international federated clinical registry on rare head and neck cancers”. Italy
Download presentation
Dr Julia Stingl, “Data sharing and re-use in the framework of the ArtiPro ERA PerMed project”. Germany
Download presentation
Dr Ludmilla Thomé Domingos Chinen, “A higher platelet-to-lymphocyte ratio is prevalent in the presence of circulating tumor microemboli and is a potential prognostic factor for non-metastatic colon cancer”. Brazil
Download presentation

11:00 - 11:30

Coffee break

11:35 - 11:55

Introduction to EP PerMed 

Wolfgang Ballensiefen (EP PerMed Chair, DLR)
Download presentation

11:55 - 12:15

EP PerMed Strategic Research and Innovation Agenda (SRIA) and Draft 
Proposal Presentation

Monika Frenzel (EP PerMed co-Chair, ANR)
Download presentation

12:15 - 13:30

1st Plenary session: Patient and Citizen Engagement and Education

Moderation: Maria Jose Ruiz Alvarez, Italian Ministry of Health
Marius Geantă, Centre for Innovation in Medicine
Larisa Aragón Castro, National Data Stream (NDS) Consortia
Nathalie Lambrechts, Biomedical Research at VITO
Merel Hennink, FT3

13:30 - 14:30

Lunch break

14:30 - 15:00

Best Practice of Overcoming Personalised Medicine Implementation Barriers 

Alberto Ortiz, co-funded ERA-PerMed Project 2018 Call “Multidimensional 
stratification for treatment of acute kidney injury - Kidney Attack Project”
(Health Research Institute of Jiménez Díaz Foundation IIS-3FJD)
Download presentation

Violeta Serra, funded by ERA-PerMed, Joint Transnational Call 2019 “Patient 
stratification based on DNA repair functionality for cancer precision medicine -
RAD51 Predict Project” (Vall d’ Hebron Institute of Oncology)
Download presentation

15:30  - 16:45

2nd Plenary session: Key Areas: International and Regional Perspectives of Personalised Medicine

Moderation: Monika Frenzel, ANR
Gianni D'Errico, Tuscany Life Sciences
Kathleen D'Hondt, Flemish Government
Joaquín Guinea, InnovaTec
Étienne Richer, IRSC | CIHR Institute of Genetics
Maria Jose Ruiz Alvarez, Italian Ministry of Health
Ángel Alonso Sánchez, Navarrabiome

16:45 - 17:15

Coffee break

17:15 - 17:35

Conclusions of the discussions on Plenary Sessions

Maria Jose Ruiz Alvarez (Italian Ministry of Health) & Monika Frenzel (ANR)


Dinner. El Mercao Restaurant

Day 2

Time schedule


08:30 - 09:00

Key-note lecture of a Personalised Medicine expert in the local community (Region of Navarra)

Gonzalo Rodríguez, a representative of Navarra Health Cluster
Download presentation

9:00 - 10:15

3rd Plenary session: Innovation System and Industrial Collaboration

Moderation: Ejner Moltzen (Chair of ICPerMed, Innovation Fund Denmark)
Jean-Marc Bourez, EIT Health
Nathalie Seigneuret, IHI Europe
Niklas Blomberg, ELIXIR
Nataša Debeljak, University of Ljubljana
Jens Habermann, BBMRI-ERIC
Maria Orr, AstraZeneca
Ralf Herold and Andrew Thomson, EMA

10:15 - 10:45

Coffee break

10:45 - 12:00

4th Plenary session: Health Systems Providers, Payers, Insurances and 
Medical Societies

Moderation: Hemma Bauer, Austrain Ministry of Education, Science and 
Astrid Vicente, National Health Institute Doutor Ricardo Jorge
Toni Andreu, EATRIS
Paula García, ECRIN
Ramiro Gilardino, Global Health Technology Assessment Policy Lead. 
Pharmaceutical Executive.
Terje Peetso, North Estonia Medical Centre
Juan José Beloqui, PharmaNAGEN Coordinator, Navarrabiomed
Vanessa Terzo, Italian Ministry of Health

12:00 - 12:15

Conclusions of the discussions on Plenary Sessions

Ejner Moltzen (Chair of ICPerMed, Innovation Fund Denmark) & Hemma Bauer 
(Austrian Ministry of Education, Science and Research)

12:15 - 12:25

Contributions for the planned proposal of EP PerMed

Monika Frenzel (EP PerMed co-Chair, ANR)

12:25 - 12:30

Wrap up & closing remarks

Ejner Moltzen (ICPerMed Chair, Innovation Fund Denmark)
Wolfgang Ballensiefen (EP PerMed Chair, DLR)
Cristina Nieto (Host, ISCIII)


12:30 - 13:00

Lunch break

13:00 - 15:30

EP PerMed Preparatory Group meeting (internal)