Berlin

Programme of the ICPerMed Conference 2018 'Personalised Medicine in Action'

20th - 21st November 2018
dbb forum, Friedrichstraße 169, 10117 Berlin
 

1st Day (20.11.2018, Tuesday)

Time schedule

Topic

8:30 - 9:30

Registration & Coffee

9:30 - 10:10

Welcome and Introduction

Anja Karliczek, Federal Minister of Education and Research (BMBF), Germany
Jens Spahn, Federal Minister of Health (BMG), Germany

10:10 - 10:40

Opening Statement

Wolfgang Burtscher, Deputy Director-General - Directorate "Research and Innovation" (RTD), European Commission
Marco Marsella, Head of the eHealth, Well-Being and Ageing Unit, Directorate General for Communications Networks, Content and Technology
Marian Harkin, Member of the European Parliament (video statement)

10:40 - 11:00

Introduction to ICPerMed

Mairead O'Driscoll, ICPerMed Chair, Health Research Board (HRB), Ireland

11:00 - 11:30

Keynote 1: Personalised Medicine and Health Economics - The Art of Defining Benefit for Individuals and Society

Katherine Payne, University of Manchester, UK

11:30 - 12:40

1st Best Practice Example of Personalised Medicine Research & Implementation - From Basic Research to the Patient: The Network Genomic Medicine in Germany - Implementing Personalised Lung Cancer Care in Clinical Routine

Introduction and Moderation: Jürgen Wolf, University Hospital Cologne, Germany
The genomic approach: Roman Thomas, University of Cologne, Germany
High-end molecular diagnostics: Reinhard Büttner, University Hospital Cologne, Germany
Innovative clinical trials: Sebastian Michels, University Hospital Cologne, Germany
Data management & IT strategy: Jürgen Wolf, University Hospital Cologne, Germany
Organization of the network: Anna Kron, University Hospital Cologne, Germany
The referring doctor's perspective: Achim Rothe, Medical Oncologist,  Germany
The patient's perspective: Bärbel Söhlke, Patient, Germany
The payer's perspective: Gerhard Schillinger, AOK Bundesverband, Germany

12:40 - 13:40

Lunch

13:40 - 14:00

ICPerMed Survey and Database

Monika Frenzel, French National Research Agency (ANR), France

14:00 - 15:10

2nd Best Practice Example of Personalised Medicine Research & Implementation - From Basic Research to the Patient: Genomic Medicine Sweden (GMS) - Acceleration of Implementation of Personalised Medicine for Rare Diseases and Cancer

Introduction and Moderation: Jan-Ingvar Jönsson, Swedish Research Council, Sweden
The policy perspective: Jenni Nordborg, National Coordinator Office for Life Science, Sweden
The patient’s perspective: Fabian Bolin, CEO & Co-founder, WarOnCancer AB and Sebastian Hermelin, COO & Co-founder, WarOnCancer AB, Sweden
The company’s perspective: Joachim Reischl, AstraZeneca, Sweden
Genomics Medicine Sweden (GMS): Richard Rosenquist, Head of GMS, Sweden
Clinical implementation of GMS: Anna Wedell, Karolinska University Hospital, Sweden

15:10  - 15:40

Coffee

15:40 - 16:00

1st Best Practice Example of Personalised Medicine Policy: The Canadian Path from Discovery to Implementation of Personalised Medicine Approaches

Etienne Richer, Canadian Institutes of Health Research (CIHR), Canada
Catalina Lopez-Correa, Genome British Columbia, Canada

16:00 - 16:30

Keynote 2: Clinical Implementation – Challenges and Solution Strategies

Daryl Pritchard, Personalized Medicine Coalition (PMC), USA

16:30 - 16:50

Public-public Partnerships for Research in Personalised Medicine, ERA-PerMed

Rafael de Andrés Medina, The National Institute of Health Carlos III (ISCIII), Spain

16:50 - 17:10

2nd Best Practice Example of Personalised Medicine Policy: Personalised Approaches of the Portuguese Adverse Drug Reaction

Miguel Antunes, National Authority of Medicines and Health Products (INFARMED), Portugal

17:15

Transfer to the dinner location by bus, starting in front of the dbb forum

18:00 - 21:30

Conference Dinner (including an improvisational theatre performance)
Bolle-Festsäle, Alt-Moabit

 2nd Day (21.11.2018, Wednesday)

Time schedule

Topic

8:30 - 9:45

Funders Coffee Meeting Networking opportunity (for funders by invitation)

9:45 - 10:15

Keynote 3: Precision Medicine: From patient need to providing solutions in clinical practise

Thorsten Gutjahr, AstraZeneca, United Kingdom

10:15 - 10:35

3rd Best Practice Example of Personalised Medicine Policy: TOPMed10 - Training the Next Generation of Leaders in Personalised Medicine.

Walter Kolch, Systems Biology Ireland

10:35 - 11:20

ICPerMed Best Practice Award

NAGEN 1000: An example of a Project for Regional Implementation of Personalised Genomic Medicine in Healthcare
Angel Alonso, Navarrabiomed, Spain

Proposal of Reccomendations for a National Strategy on personalized Medicine Report
Consuelo Martin de Dios, Fundación Instituto Roche, Spain

In vivo evidence for ribavirin-induced mutagenesis of the hepatitis E virus genome
Daniel Todt, Ruhr-University Bochum, Germany

11:20 - 11:50

Coffee and Poster presentation for ICPerMed Best Practice Award

11:50 - 13:00

3rd Best Practice Example of Personalised Medicine Research & Implementation - From Basic Research to the Patient: Translational medicine in familial Hypercholesterolaemia – from Phenotype to Genotype to Treatment

Introduction and Moderation: Mafalda Bourbon and João Lavinha, INSA, Portugal
Idea/Mechanism/Diseases and Research Effort: Mafalda Bourbon, INSA, Portugal
Clinical approach and studies: Eric Sijbrands, Erasmus Medical Centre, Netherlands
Market Access of Diagnosis and Therapy: Steve Humphries, Store Gene, UK
Health System Implementation: Eric Sijbrands, Erasmus Medical Centre, Netherlands
Patient benefit: Gabriele Hanauer-Mader, FH Austria, Austria
Health Economics: Pedro Mata, Fundacion Hipercolesterolemia Familiar, Spain
ELSI: João Lavinha, INSA, Portugal

13:00 - 13:30

Keynote 4: International views of Personalised Medicine

The Chinese perspective: Ning Li, BGI Group, China
The Indian perspective: Geeta Jotwani, Ministry of Health & Family Welfare, India

13:30 - 13:45

Conclusions and Outlook

Mairead O'Driscoll, ICPerMed Chair, Health Research Board (HRB), Ireland

13:45

Lunch & End of Conference