Governance

ICPerMed is organised around an Executive Committee consisting of its members, with an elected chair and two vice-chairs. The Executive Committee is supported by five Working Groups and advised by an Advisory Board.

In addition, the ICPerMed Secretariat supports with content-driven input, logistics and organisation.

The Steering Board is a sub-group of the Executive Committee, taking care of the consortium’s everyday work in close cooperation with the ICPerMed Secretariat.

Interested organisations and initiatives can further become members of the Stakeholder Forum.

ICPerMed Governance

Executive Committee

ICPerMed is organised around an Executive Committee which includes representatives nominated by member organisations. Members include ministries, public and private ‘not-for-profit’ health research funding and policy organisations (see members). The Executive Committee is at the very centre of ICPerMed’s structure, being the main decision making body. 

Chairs

A chair and two vice-chairs for the Executive Committee were elected for two years. Their job is to chair at Executive Committee meetings and to lead the Steering Board, the sub-group taking care of the consortium’s everyday work.

Working Groups

The ICPerMed Working Groups consist of research funders and experts, working towards implementing the ICPerMed activities prioritised by the Executive Committee.

The main objectives oft the Working Groups are:

  • contributing to the development of ICPerMed recommendations/strategic publications/reports and to ICPerMed dissemination activities (e.g. roadmap/Scientific Research and Innovation Agenda)
  • providing content-driven input for ICPerMed events
  • exchanging with stakeholders and representing ICPerMed in thematically focused events to improve the visibility and impact of ICPerMed in the respective community
  • identifying and validating Best Practise examples

There are currently five Working Groups:

  1. Clinical Studies in Personalised Medicine
  2. Personalised Medicine in healthcare
  3. Patients’ empowerment
  4. Education & Curricula in Personalised Medicine
  5. Health economic value of Personalised Medicine

The Working Groups report regularly to the Executive Committee. Their results give input for the State-of-the-Art report and for organizing workshops. Each Working Group is chaired by an Working Group lead and supported by a Working Group co-lead, who were chosen from and elected by the Executive Committee. In addition, the ICPerMed Secretariat supports with content-driven input, logistics and organisation.

Advisory Board

The Advisory Board is currently in the process of being established. It will integrate expertise across the entire healthcare value chain. The objectives of the Adivsory Board will be to identify strategic questions for ICPerMed’s running and future activities, to ensure ICPerMed’s alignment with current and future developments in Personalised Medicine research and to evaluate ICPerMed from an independent point of view.

Steering Board

For organising the consortium’s everyday work, a Steering Board was formed. It consists of a chair and two vice-chairs as well as the Working Group leads. These are the current members of the Steering Board:

These are the current members of Steering Board:

Function Organization Country First Name Last Name

Chair

Innovation Fund Denmark Denmark Ejner Moltzen
Vice-Chair Instituto Nacional de Saude Doutor Ricardo Jorge (INSA) Portugal Astrid Vicente

Vice-Chair 2

Federal Ministry of Science, Research and Economy Austria Hemma Bauer
Lead Working Group 1 German Aerospace Center (DLR), Project Management Agency, mandated by Federal Ministry of Education and Research (BMBF) Germany Wolfgang Ballensiefen
Lead Working Group 2 L’agence national de la recherche (ANR) France Monika Frenzel
Lead Working Group 3 Ministry of Health Italy Maria José Ruiz Alvarez
Lead Working Group 4 Centre for Innovation in Medicine (CIM) mandated by Ministry of Health Romania Marius Geanta
Lead Working Group 5 Canadian Institutes of Health Research (CIHR) Canada Etienne Richer
EC Personalised Medicine Unit in DG Research and Innovation European
Commission
Irene Norstedt
Secretariat German Aerospace Center (DLR), Project Management Agency Germany Wolfgang Ballensiefen
Secretariat German Aerospace Center (DLR), Project Management Agency Germany Konstanze Albrecht

Stakeholder Forum

Full ICPerMed membership is restricted to ministries, public and private ‘not-for-profit’ health research funding and policy organisations. However, many other stakeholders have a strong interest in personalised medicine, e.g. research institutions, patient initiatives, related projects or industry organisations. Through its Stakeholder Forum, ICPerMed is in close contact with all these interested parties. Members of the Stakeholder Forum are informed about ICPerMed’s work, are invited to workshops and conferences of ICPerMed and are asked to provide their perspective on specific issues.