Governance

ICPerMed is organised around an Executive Committee consisting of its members, with an elected chair and two vice-chairs. The executive committee is supported by two different kinds of working groups:

  • The Challenge Groups, consisting of funders and experts, develop strategies with respect to their specific topic;
  • The Action Item Groups, consisting of research funders, work towards implementing ICPerMed’s Action Plan.

In addition, the ICPerMed Secretariat supports with logistics and organisation.

The Steering Board is a sub-group taking care of the consortium’s everyday work. Interested organisations and initiatives not eligible as ICPerMed members can take part in the stakeholder group.

ICPerMed Governance

Executive Committee

ICPerMed is organised around an Executive Committee which includes representatives nominated by member organisations. Members include ministries, public and private ‘not-for-profit’ health research funding and policy organisations (see members). The Executive Committee is at the very centre of ICPerMed’s structure, being the main decision making body.

Chairs

A chair and two vice-chairs for the Executive Committee were elected for two years. Their job is to chair at Executive Committee meetings and to lead the Steering Board, the sub-group taking care of the consortium’s everyday work.

Action Item Groups

The aim of the Action Item Groups is to work towards the implementation of ICPerMed’s Action Plan. They are mapping ongoing activities, using ICPerMed’s database as a starting point but going beyond it both in the way of presenting the information and in the kind of activities included. In addition, they are collecting best practice examples for the major topics of the Action Plan and develop strategies for putting the “actionable items” of the Action Plan into practice. There are currently five Action Item Groups:

  1. Data and ICT – Enabling Technology
  2. Data and ICT – Improving Health Care
  3. Translational Research
  4. Health Economics, Regulation, Market Access
  5. People and Society

The Action Item Groups report regularly to the Executive Committee. Their results give input for the State-of-the-Art report and for organizing workshops. Each Action Item Group is chaired by an Action Item Group Lead.

During the first ICPerMed conference “Personalised Medicine in Action” in November 2018, each Action Item Group prepared a leaflet to introduce their respective topic. These leaflets can be downloaded here:

Challenge Groups

The focus of the Challenge Groups is derived from the five overarching challenges in personalised medicine that were identified in a previous project, PerMed. In each group, high-level experts in their field work together with members nominated by the Executive Committee on developing overarching strategies and solutions for their specific topic.

Challenge Groups

The five challenges and their corresponding Challenge Groups integrate expertise across the entire healthcare value chain. In ICPerMed’s view, this is the key for addressing the truly cross-sectoral nature of personalised medicine. Each challenge group is chaired by a so-called 'facilitator' who was chosen from and elected by the Executive Committee.

Steering Board

For organising the consortium’s everyday work, a Steering Board was formed. It consists of a chair and two vice-chairs, The Action Item Group leads and the Challenge Group Facilitators. In addition, the ICPerMed Secretariat and the European Commission (EC) take part in the Steering Board.

These  are the current members of Steering Board:

Function Organization Country First Name Last Name
Chair Swedish Research Council Sweden Jan-Ingvar Jönsson
Vice-Chair Instituto Nacional de Saude Doutor Ricardo Jorge (INSA) Portugal Astrid Vincente
Vice-Chair
 
German Aerospace Center (DLR), Project Management Agency Germany Wolfgang Ballensiefen
Facilitator Challenge 1 Ministry of Health Hungary Maria Judit Molnar
Facilitator Challenge 2 Swedish Research Council Sweden Malin Eklund
Facilitator Challenge 3 / Lead Action Item Group 3 Federal Ministry of Science, Research and Economy Austria Hemma Bauer
Facilitator Challenge 4 / Lead Action Item 4 Innovation Fund Denmark Denmark Ejner Moltzen
Facilitator Challenge 5 / Lead Action Item Group 2 Ministry of Health Italy Gaetano Guglielmi
Lead Action Item Group 1 L’agence national de la recherche (ANR) France Monika Frenzel
Lead Action Item Group 5 Regional Foundation for Biomedical Research (Lombardy) Italy Paola Bello
EC Personalised Medicine Unit in DG Research and Innovation European
Commission
Irene Norstedt
Secretariat German Aerospace Center (DLR), Project Management Agency Germany Ulrike Bußhoff

Stakeholder Group

Full ICPerMed membership is restricted to ministries, public and private ‘not-for-profit’ health research funding and policy organisations. However, many other stakeholders have a strong interest in personalised medicine, e.g. research institutions, patient initiatives, related projects or industry organisations. Through its stakeholder group, ICPerMed is in close contact with all these interested parties. Members of the stakeholder group are informed about ICPerMed’s work and invited to workshops and conferences to be part of ICPerMed. Experts and stakeholders are also invited to Executive Committee meetings for information and discussion on certain topics.