EP PerMed Information Event – Presentations online
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11 June 2021 – The virtual Information Event "European Partnership for Personalised Medicine (EP PerMed) calling for national and regional involvement" organised by ICPerMed and ERA PerMed took place on May 31, 2021.
read more: EP PerMed Information Event – Presentations online.
Sino-EU PerMed Workshop
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8 June 2021 – Sino-EU PerMed invites to a workshop about Cooperation between China and Europe in Personalised Medicine. The results of a Sino-EU scientific and technological mapping and present best-practice examples for Sino-EU Cooperation will be presented. The workshop will be held in English and Chinese.
read more: Sino-EU PerMed Workshop.
Best Practice Example: Strimvelis® Gene Therapy
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2 June 2021 - The ex-vivo gene therapy Strimvelis® was approved in Europe in 2016 to treat children affected by severe combined immunodeficiency due to adenosine deaminase deficiency (ADA-SCID) who lack a matching bone marrow donor. ADA-SCID is an inherited disorder caused by mutations in the ADA gene and results in a seriously compromised immune system.
read more: Best Practice Example: Strimvelis® Gene Therapy.
EP PerMed Information Sheets
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27 May 2021 – In follow up of the “guidance document”, seven Information Sheets (download below) were developed by the ICPerMed and ERA PerMed “Preparatory Group”, comprising of four representatives of each initiative. The Information Sheets aim to promote the preparations of the European Partnership for Personalised Medicine (EP PerMed), which has been proposed to be one of the partnerships in Horizon Europe, the 9th framework programme of the European Union.
read more: EP PerMed Information Sheets.
Update on the CSA Stars
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20 May 2021 – The European Coordination and Support Action STARS (Strengthening Training of Academia in Regulatory Science) aims to improve the direct regulatory impact of results obtained in medical research. Their recent activities include a publication, a training course and an inventory on regulatory affairs.
read more: Update on the CSA Stars.
Best Practice Example: PERSEPHONE project
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5 May 2021 – The objective of the project “PERSonalised mEdicine for Patients with Haemophilia and Other rare bleediNg disordErs” (PERSEPHONE) has been to implement a personalised approach for the optimal multidisciplinary care of haemophilic patients. The patient management pathway was re-designed based on a Value Based Healthcare (VBH) approach.
read more: Best Practice Example: PERSEPHONE project.
EP PerMed Information Day on May 31, 2021 – Registration is open
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28 April 2021 – The initiatives ICPerMed and ERA PerMed invite all interested stakeholders, in particular national and regional authorities (as ministries, funders, etc.) to the virtual event "European Partnership for Personalised Medicine calling for national and regional involvement" to inform about ICPerMed and ERA PerMed's proposal for EP PerMed, its objectives, activities and expected impacts and the overall framework for engagement in this partnership.
read more: EP PerMed Information Day on May 31, 2021 – Registration is open.
Save-the-date: EP PerMed Information Day on May 31, 2021
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21 April 2021 – The initiatives ICPerMed and ERA PerMed invite all interested stakeholders, in particular national and regional authorities (as ministries, funders, etc.) to the virtual event “European Partnership for Personalised Medicine calling for national and regional involvement” to inform about ICPerMed and ERA PerMed's proposal for EP PerMed, its objectives, activities and expected impacts and the overall framework for engagement in this partnership.
read more: Save-the-date: EP PerMed Information Day on May 31, 2021.
SAPHIRE Webinar
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12 April 2021 – The SAPHIRe consortium invites to the first in a series of online interactive workshops in spring 2021 on the specific needs of European regions concerning personalised medicine. The topic of the first webinar will be ‘Problems and solutions for personalised healthcare in remote, rural, and sparsely populated regions’ and will be organised on Tuesday 20 April 2021, 10h00-12h30. Registration is open.
read more: SAPHIRE Webinar.
Regions4PerMed Workshops on Personalising Health Industry
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8 April 2021 – The ICPerMed-related CSA Regions4PerMed organizes two workshops on Personalising Health Industry. The first workshop “A Regional R&D Ecosystem for Personalising Health Industry – Spotlight on the Free State of Saxony” will take place on 28 April 2021 and the second workshop “Regional Translational Ecosystems Supportive of Personalising Health Industry” will take place on 19 May 2021.
read more: Regions4PerMed Workshops on Personalising Health Industry.
ICPerMed State of the Art Report 2020
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1 April 2021 – In November 2020, ICPerMed entered its fifth year and will share with this State of the Art Report 2020 an overview of its activities over the past four years, the progress made and future steps to be taken to fulfil its vision:
read more: ICPerMed State of the Art Report 2020.
Press Release: ICPerMed Virtual Conference
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26 February 2021 – The second conference of ICPerMed “Personalised Medicine – From Vision to Practice” assembled virtually around 500 viewers from 57 countries. The conference was hosted by the French National Research Agency (ANR) on February 25-26, 2021 and presented solutions and strategies on how to successfully implement personalised medicine approaches.
read more: Press Release: ICPerMed Virtual Conference.
Kickoff of the CSA EU-Africa PerMed
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04 March 2021 – A new member is joining the ICPerMed Family: the Coordination and Support Action (CSA) EU-Africa PerMed “Building links between Europe and Africa in Personalised Medicine”, funded by the European Union through its Framework Programme Horizon 2020 in support of ICPerMed.
read more: Kickoff of the CSA EU-Africa PerMed.
Announcement of the Open Market Consultation of the EU
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26 February 2021 – An Open Market Consultation of the H2020 Pre-Commercial Procurement of Instand-NGS4P will be held on 22-23 March 2021 regarding integrated and standardized Next Generation Sequencing workflows for personalised therapy.
read more: Announcement of the Open Market Consultation of the EU.
ICPerMed Virtual Conference 2021 started
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25 February 2021 – What are the challenges and the existing solutions for Personalised Medicine implementation? This key question is at the heart of the virtual conference organised on February 25-26, 2021. The event assembles around 600 participants from 57 different countries.
read more: ICPerMed Virtual Conference 2021 started.
SAPHIRe survey on Organisation of Personalised Health
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24 February 2021 – This survey is set up give a comprehensive overview of the organisation of the competences related to Personalised Medicine at the different levels in the different Regions/Countries of Europe.
read more: SAPHIRe survey on Organisation of Personalised Health.
Best Practice Example: MASTER – Innovation in Personalised Oncology
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08 February 2021 – The MASTER (Molecularly Aided Stratification for Tumour Eradication Research) program is a personalised oncology network that illustrates the clinical potential of full genetic analyses and individually tailored therapy in young adults with advanced cancers and patients with rare tumours for which often only few treatment options are available.
read more: Best Practice Example: MASTER – Innovation in Personalised Oncology.
ICPerMed Conference 2021: Virtual platform is now open!
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01 February 2021 – The virtual platform for the ICPerMed conference 2021 "Personalised Medicine – from Vision to Practice" is now open. The conference will take place virtually on February 25-26. During two half-days, ICPerMed will discuss and promote solutions and strategies on how to implement successfully personalised medicine approaches.
read more: ICPerMed Conference 2021: Virtual platform is now open!.
PerMedCoE: Exascale-ready cell-level simulations
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21 January 2021 - Coordinated by the Barcelona Supercomputing Center (BSC) and funded by the European Commission, this recently launched high-performance computing (HPC) centre of excellence will optimise codes for cell-level simulations and bridge the gap between organ and molecular simulations, thus contributing to the European Personalised Medicine Roadmap.
read more: PerMedCoE: Exascale-ready cell-level simulations .
CSA STARS - Strengthening Training of Academia in Regulatory Science
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20 January 2021 - This coordination and support action funded by the EU aims to improve the direct regulatory impact of results obtained in medical research. More information about their current activities can be found in their recently published newsletter.
read more: CSA STARS - Strengthening Training of Academia in Regulatory Science.
ERA PerMed Information Event JTC2021
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11. January 2021 – ERA PerMed will organize an Information Event for potential applicants for the Joint Transnational Call 2021 “MULTIDISCIPLINARY RESEARCH PROJECTS ON PERSONALISED MEDICINE – DEVELOPMENT OF CLINICAL SUPPORT TOOLS FOR PERSONALISED MEDICINE IMPLEMENTATION”. The meeting will take place online on the 25th of January 2021, 13:00 to 14:30 (CET).
read more: ERA PerMed Information Event JTC2021.
Fourth ERA PerMed Call for Proposals open
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15 December 2020 – The ERA-NET ERA PerMed has launched the fourth Joint Transnational Call for multidisciplinary research projects on Personalised Medicine. With this call ERA PerMed wants to align national research strategies, promote excellence, reinforce the competitiveness of European players in Personalised Medicine, and enhance the European collaboration with non-EU countries.
read more: Fourth ERA PerMed Call for Proposals open.
Best Practice Example: EMR for personalised treatment
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Healthcare organizational scenarios are changing rapidly, and this requires the re-design of the hospital processes through the adoption of new organizational models, specifically for the proactive management of chronic and fragile patients. The introduction of new services for patients and the use of Telemedicine and Artificial Intelligence technologies are key elements to support the expected change.
read more: Best Practice Example: EMR for personalised treatment.
SAPHIRe workshop: Health data for innovation
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24 November 2020 – Through its partnership and bottom-up approach, the smart specialisation agenda brings together local authorities, academia, business spheres and the civil society, working for the implementation of long-term growth strategies supported by EU funds. All across Europe companies arise that produce or use health data.
read more: SAPHIRe workshop: Health data for innovation.
Brazilian Agency CNPq joins ICPerMed
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13 November 2020 – ICPerMed welcomes CNPq as observer. CNPq is the largest Federal Research Funding Agency of Brazil, operating also via a partnership with the Brazilian Ministry of Health which has recently started the Brazilian National Program of Genomic and Precision Health, Genomas Brasil.
read more: Brazilian Agency CNPq joins ICPerMed.
SAPHIRe Workshop: Making data usable
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12 November 2020 – EU citizens have the right to access healthcare in any EU country and to be reimbursed for care abroad by their home country. To realise this right, the appropriate infrastructures and standards should be created. Regional providers of health data, such as (university or regional) hospitals, first line healthcare or genetic centres, collect massive amounts of health data. This creates a large need for interoperable and accessible data.
read more: SAPHIRe Workshop: Making data usable.
Best Practice Example: 2025 France Genomic Medicine Initiative
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3 November 2020 – Genomic medicine is profoundly changing patient care. Routine genome sequencing will enable a high number of patients to benefit from more personalised diagnostics and personalised therapeutic care. This includes rare diseases and cancer but also more common diseases (e.g. metabolic, cardiovascular, neurological diseases).
read more: Best Practice Example: 2025 France Genomic Medicine Initiative.
ICPerMed conference Personalised Medicine – programme released
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2 November 2020 – The preliminary programme for the ICPerMed conference "Personlised Medicine – From Vision to Practice" is now available. Due to the COVID-19 pandemic, the second ICPerMed Conference, initially scheduled for October 15-16, 2020, will now take place in February 25-26, 2021 in Paris at La Maison de la Chimie.
read more: ICPerMed conference Personalised Medicine – programme released.
Update on European Partnership on Personalised Medicine
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2 November 2020 – In preparation of the European Commission’s member states consultation for the co-funded European Partnership for Personalised Medicine, taking place most probably at the end of 2020 or beginning of 2021, ICPerMed together with ERA PerMed developed a supporting document in form of a concept paper that was officially passed on to the European Commission on October 13, 2020.
read more: Update on European Partnership on Personalised Medicine .
New ICPerMed chair and vice chair elected
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2 November 2020 – ICPerMed is glad to announce that Ejner Moltzen from Innovation Fund Denmark has been elected new chair of the ICPerMed Executive Committee and Hemma Bauer from the Federal Ministry of Science, Research and Economy in Austria has been elected new vice chair of the ICPerMed Executive Committee.
read more: New ICPerMed chair and vice chair elected.
COVID-19 and Personalised Medicine
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29 October 2020 – Professor Yazdan Yazdanpanah and his colleague Dr Olivier Robineau share with ICPerMed their first lessons learned on the health crisis and the contribution of personalised medicine approaches to fight infectious diseases through the light of the COVID-19 pandemic.
read more: COVID-19 and Personalised Medicine.
4th Annual Meeting of the ÖPPM
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28 October 2020 – The 4th Annual Meeting of the ÖPPM 2020 will be guided by the main topic “Digitalization in Personalized Medicine” The webinar series will start on 20.10.2020 featuring international and national keynotes on societal and technological aspects.
read more: 4th Annual Meeting of the ÖPPM.
Workshop: Ethical, Legal, Social Aspects of personalised Medicine
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28 October 2020 – On November 17 and 18, 2020 the ELSA technical Workshop takes place. The main goal is an exchange of insights on key ethical, legal and social issues in personalised medicine (PM) research and implementation in Europe and in Latin America and the Caribbean (LAC).
read more: Workshop: Ethical, Legal, Social Aspects of personalised Medicine.
Webinar Series on Personalised Medicine
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20 October 2020 – The Royal Society of Medicine in London organises a new webinar series on personalised medicine. The series starts on 20 October and explores the concept of personalised care and the role of digital technology in delivering these services. Recordings of each episode are available for all registered delegates to watch on demand for a month after each live broadcast.
read more: Webinar Series on Personalised Medicine.
Pre-Announcement JTC 2021
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14 October 2020 – ERA-PerMed will launch its new call with a budget of approximately 16 million euros on December 14th 2020. Pre-proposals can be submitted until March 4th 2021.It is expected that consortia invited for the full-proposal stage, will need to submit their proposal on June 16th, 2021.
read more: Pre-Announcement JTC 2021.
SAPHIRe workshop: access to health data
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13 October 2020 – To gain a better understanding on the regional perspective on access to health data, SAPHIRe will host an online interactive workshop on Thursday 29th October 2020, 10h30-12h30 CET. The workshop will discuss the access to health data from different points-of-view. Regional actors such as research institutions, hospitals, industry and individuals will be heard.
read more: SAPHIRe workshop: access to health data.
Joint Sustainability Workshop of ICPerMed and ERA PerMed
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14 October 2020 – On September 10-11, 2020, the first Joint Workshop of ICPerMed and the closely related initiative ERA PerMed took place. Members of both initiatives discussed options for continuing their work in the new framework programme of the European Commission “Horizon Europe” and in particular the potential European Partnership in Personalised Medicine.
read more: Joint Sustainability Workshop of ICPerMed and ERA PerMed.
Personalised Lung Cancer Care in Germany
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07 July 2020 – ICPerMed features best practice examples for the successful translation of personalised medicine research into an added value for the patient as well as examples for policy making and impact analysis on personalised medicine research. The German Network Genomic Medicine (NGM) Lung Cancer works to implement personalised lung cancer care effectively in clinical routine.
read more: Personalised Lung Cancer Care in Germany.
New Best Practice Example for Personalised Medicine
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30 June 2020 – ICPerMed features best practice examples for the successful translation of personalised medicine research into an added value for the patient as well as examples for policy making and impact analysis on personalised medicine research. A new best practice example featuring 'NAGEN 1000', a Spanish regional pilot study to incorporate recent advances in cutting edge genomic research technology (Whole Genome Sequencing) into the real clinical practice, is now online.
read more: New Best Practice Example for Personalised Medicine.
ICPerMed vice chair re-elected
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03 June 2020 – ICPerMed is glad to announce that Dr. Astrid Vicente from the Instituto Nacional de Saude Doutor Ricardo Jorge (INSA) in Portugal has been re-elected as vice chair of the Executive Committee.
read more: ICPerMed vice chair re-elected .
ICPerMed Conference 'From Vision to Practice' – New Dates
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27 May 2020 – We would like to inform you that in view of the coronavirus situation (COVID-19), ICPerMed and the European Commission have taken the difficult decision to postpone the ICPerMed Conference 2020 'Personalised Medicine – From Vision to Practice' which was due to be held on October 15-16, 2020 in Paris. It will now take place from February 25-26, 2021 at the same venue.
read more: ICPerMed Conference 'From Vision to Practice' – New Dates.
Online Workshop – Exit Strategies for COVID-19 Lockdown
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14 May 2020 – The SAPHIRe project will host the online workshop 'Exit strategies for COVID-19 lockdown, what role do regions play' on 16 June 2020 to gain a better understanding of the different regional approaches to tackling these challenging times.
read more: Online Workshop – Exit Strategies for COVID-19 Lockdown.
How Personalised Medicine will transform Healthcare by 2030
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04 May 2020 – The ICPerMed Chairs Astrid M. Vicente, Wolfgang Ballensiefen and Jan-Ingvar Jönsson have published a commentary on the ICPerMed Vision Paper in the Journal of Translational Medicine. The article focuses on how personalised medicine will lead to the next generation of healthcare by 2030.
read more: How Personalised Medicine will transform Healthcare by 2030.
ICPerMed Conference 'From Vision to Practice' – Registration open
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23 March 2020 – The registration for the second conference of the International Consortium for Personalised Medicine (ICPerMed) 'Personalised Medicine – From Vision to Practice' is now open. The conference will take place in Paris, France, at La Maison de la Chimie on October 15-16, 2020, and will demonstrate how personalised medicine will lead to the next generation of healthcare by 2030.
read more: ICPerMed Conference 'From Vision to Practice' – Registration open.
Twinnings in DigitalHealthEurope & Online Seminar
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20 March 2020 – The DigitalHealthEurope call for applications for twinning projects will be open until 4 May 2020. The call is available for local, regional and national health and care providers in Europe that wish to adopt innovative solutions which are available for transfer from another local, regional and national health and care provider in Europe.
read more: Twinnings in DigitalHealthEurope & Online Seminar.
Survey on the Future of Personalised Medicine
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13 March 2020 – In order to give input to the discussion around the ICPerMed Vision Paper 2030, ICPerMed has conducted a web-based survey with experts on personalised medicine from all over Europe and beyond. An article on the methodology behind and the results and conclusions of this survey was now published in the Personalised Medicine Journal.
read more: Survey on the Future of Personalised Medicine.
New Best Practice Example for Personalised Medicine
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07 February 2020 – ICPerMed features best practice examples for the successful translation of personalised medicine research into an added value for the patient as well as examples for policy making and impact analysis on personalised medicine research. A new best practice example featuring pharmacogenetic recommendations for personalised medicine is now online. More will follow in due time.
read more: New Best Practice Example for Personalised Medicine.
Calls and Events of the EJP Rare Diseases
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30 January 2020 – The European Joint Programme on Rare Diseases (EJP RD) published several calls for proposals and two announcements for networking and training events on different topics in the area of rare diseases.
read more: Calls and Events of the EJP Rare Diseases.
RE (ACT) Congress & IRDiRC Conference on Rare Diseases
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30 January 2020 – The The RE(ACT) Congress (International Congress of Research on Rare and Orphan Diseases) and conference of IRDiRC (International Rare Diseases Research Consortium) will take place on 11-14 March 2020 in Berlin.
read more: RE (ACT) Congress & IRDiRC Conference on Rare Diseases.
Life-On-Chip Conference on Personalised Medicine
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15 January 2020 – The Life-On-Chip Conference "Enabling personalized medicine by cross-over innovation" will take place on 20 and 21 February in Leuven, Belgium. The ambition of the conference is to bring together international players and to help and stimulate them to do business and to set-up new partnerships for cooperative R&D projects.
read more: Life-On-Chip Conference on Personalised Medicine.
SAPHIRe Workshop: Regional Health Data Providers and Users
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15 January 2020 – The third SAPHIRe workshop will discuss the role of regional actors and pursue important questions regarding the collection and use of health data. The workshop will take place on 22 and 23 April 2020 in Leuven, Belgium.
read more: SAPHIRe Workshop: Regional Health Data Providers and Users.
Statement concerning European Partnership
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17 December 2019 – ICPerMed and ERA PerMed published the joint statement "Towards the Implementation of Personalised Medicine in Europe - The Advantage of a European Partnership".
read more: Statement concerning European Partnership.
Third ERA PerMed Call for Proposals now open
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17 December 2019 – The ERA-NET ERA PerMed has launched the third Joint Transnational Call for transnational research proposals in the field of Personalised Medicine. With this call ERA PerMed wants to encourage and enable interdisciplinary collaborations towards the implementation of PM, by combining pre-clinical and/or clinical research with computational components and research on relevant ethical, legal and social aspects (ELSI) and/or research on the optimisation of the health care systems.
read more: Third ERA PerMed Call for Proposals now open.
SAPHIRe launched online Observatory
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11 December 2019 – The ICPerMed-related coordination and support action SAPHIRe launched a new online database for policymakers, funders and other key stakeholders in the field of Personalised Medicine.
read more: SAPHIRe launched online Observatory.
ICPerMed State of the Art Report 2018
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14 November 2019 – The ICPerMed State of the Art Report 2018 has now been published. The report resumes ICPerMed activities performed in the second year since the establishment of the consortium: November 2017 to October 2018.
read more: ICPerMed State of the Art Report 2018.
ICPerMed Workshop 2019
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12 November 2019 – The second workshop 'Personalised Medicine for All Citizens and Patients within Sustainable Implementation' of the International Consortium for Personalised Medicine (ICPerMed) assembled around 150 experts from 31 countries in Madrid, Spain.
read more: ICPerMed Workshop 2019.
Call Announcement: ICPerMed Recognition 2020
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06 November 2019 – The International Consortium for Personalised Medicine (ICPerMed) has published the announcement for their third 'Best Practice in Personalised Medicine' Recognition 2020 today. The objective of this recognition is to honour, encourage, promote and disseminate outstanding best practice examples in personalised medicine.
read more: Call Announcement: ICPerMed Recognition 2020.
Pre-announcement: ERA PerMed Call 2020
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5 November 2019 – ERA PerMed will launch the third Joint Transnational Call for Proposals to support translational research projects in the field of Personalised Medicine in December 2019.
read more: Pre-announcement: ERA PerMed Call 2020.
Pre-announcement: ICPerMed Recognition 2020
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7 October 2019 – The International Consortium for Personalised Medicine (ICPerMed) has published the pre-announcement for their third 'Best Practice in Personalised Medicine' Recognition 2020 today. The objective of this recognition is to honour, encourage, promote and disseminate outstanding best practice examples in personalised medicine.
read more: Pre-announcement: ICPerMed Recognition 2020.
ICPerMed Vision Paper
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25 September 2019 – ICPerMed published a "Vision Paper" on how the use of personalised medicine approaches will promote "next-generation" medicine in 2030. The vision entails that medicine needs to become more firmly centred on the individual’s personal characteristics and at the same time be more effective and have an economic value. Next-generation medicine should also provide equitable access for all citizens to the best possible healthcare in the future.
read more: ICPerMed Vision Paper.
Workshop on Rare disease biological sample data in biobanks
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9 September 2019 – On 29-30 October 2019, a training workshop on “Organizing and maximizing rare disease biological sample data in biobanks” will take place in Vilnius, Lithuania. This workshop is a part of a series of capacity building programs put forth by the European Joint Programme on Rare Diseases (EJP RD).
read more: Workshop on Rare disease biological sample data in biobanks.
ICPerMed Executive Committee Meeting in Tallinn
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19 June 2019 – In June, the ICPerMed Executive Committee met in Tallinn, Estonia to discuss and plan strategy and future activities of the consortium. The meeting was hosted by the Estonian partner, the Ministry of Social Affairs.
read more: ICPerMed Executive Committee Meeting in Tallinn.
ICPerMed Vice-Chair re-elected
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2 May 2019 – ICPerMed is glad to announce that Wolfgang Ballensiefen from DLR Project Management Agency in Germany has been re-elected as Vice-Chair of the Executive Committee.
read more: ICPerMed Vice-Chair re-elected.
First best practice example now online on ICPerMed website
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26 March 2019 – ICPerMed will feature best practice examples for the successful translation of personalised medicine research into an added value for the patient as well as examples for policy making and impact analysis on personalised medicine research. A first best practice example featuring the Genomic Medicine Sweden initiative is now online. More will follow in due time.
read more: First best practice example now online on ICPerMed website.
ICPerMed Workshop 2019
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15 February 2019 – The Second ICPerMed Workshop 2019 "Citizens, patients and implementation" will take place on 5-6 November 2019 in Madrid, Spain.
read more: ICPerMed Workshop 2019.
ICPerMed Recognition 2019 – deadline postponed
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21 January 2019 – It is still possible to submit proposals for the 'Best Practice in Personalised Medicine' Recognition 2019. The deadline for submission was postponed till 4 February 2019.
read more: ICPerMed Recognition 2019 – deadline postponed.
Second ERA PerMed Call for Proposals now open
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9 January 2019 – The ERA-NET ERA PerMed has launched the second Joint Transnational Call for research proposals to support transnational research projects in the field of Personalised Medicine (PM) and to encourage and enable interdisciplinary collaborations towards implementation of PM, in combining pre-clinical and/or clinical research with computational components and research on relevant ethical, legal and social aspects and/or research on the optimisation of health care systems.
read more: Second ERA PerMed Call for Proposals now open.
