Regional providers of health data, such as (university or regional) hospitals, primary caregivers or genetic centres, collect massive amounts of health data every day. This creates a large need for interoperable and accessible data. The differences in governance of health data, the different authority levels, and the ethical and cultural diversity across European regions further complicate the swift uptake of personalised medicine.
Several questions will be discussed during the SAPHIRe workshop:
• What are the practical and ethical considerations on the use of health data?
• How can we unlock the opportunity that these large datasets hold without breaching the privacy of the patients?
• Who is the owner of the data?
• What standards need to be adopted to make the data interoperable?
• How can we share the data in a safe and fair manner?
• Which roadblocks need to be tackled to adopt big data use within healthcare?
Who should attend?
Regional actors such a representatives from hospitals, genetic centres, primary healthcare providers, cluster organisations, patient organisations, SMEs, start-ups, large companies, research institutes, regional policy makers and other stakeholders active in health data technology.