SAPHIRe Workshop: Making data usable

12 November 2020 – EU citizens have the right to access healthcare in any EU country and to be reimbursed for care abroad by their home country. To realise this right, the appropriate infrastructures and standards should be created. Regional providers of health data, such as (university or regional) hospitals, first line healthcare or genetic centres, collect massive amounts of health data. This creates a large need for interoperable and accessible data.

Big data sets include electronic health records (EHR), data resulting from imaging technologies, other large throughput (-omics) technologies, and wearables or health and lifestyle (mobile) apps. The differences in governance of health data, the different authority levels, and the ethical and cultural diversity across European regions further complicate the swift uptake of personalised medicine.

To gain a better understanding on the regional perspectives to make health data accessible, SAPHIRe[1] will host an online interactive workshop on Thursday 26th November 2020, 10h30-12h30 CET. During the webinar we will discuss regional best practices, examples and lessons learned. More information can be found on the SAPHIRe website.

You can register here. A participation link will be sent to you one day prior to the event.


Confirmed speakers:

Gianni D’Errico, Coordinator Regions4PerMed
Gary Saunders, Human Data Coordinator at ELIXIR
Georges De Feu, CEO at LynxCare
Nathan Lea, head of i~HD‘s Information Governance & GDPR Task Force


A workshop wouldn’t be complete without networking opportunities. Join our SAPHIRe Discord server, and get to know the other participants or ask questions to our speakers.

We are still interested in your (regional) policies on personalised medicine, don’t hesitate to complete our survey.


[1] SAPHIRe, which stands for Securing the Adoption of Personalised Health in Regions, is a three-year project (2019-2021) funded by the European Commission (DG Research & Innovation) under the Horizon 2020 programme. It is managed by a consortium consisting of the department of Economy, Science and Innovation of the Flemish Government, the Public Health Agency of Northern Ireland, EIT Health/InnoStars and EuroBioForum Foundation (see