EULAC-PerMed: Summary of 2019 and upcoming events
The first year of EULAC-PerMed concluded successfully in December 2019 with the “Big Week of Personalised Medicine” that took place in Montevideo, Uruguay. A EULAC PerMed delegation had the honour to be received by the President of the Republic of Uruguay who thanked the consortium for this great event and expressed the country's interest in following these initiatives closely.
The events included a Summer School “Health Technology Assessment Research & PerMed”, a Stakeholder Workshop “Building bridges on personalised medicine (PM) between Latin American and Caribbean countries (LAC) and Europe” and a Technical Workshop “Innovative methodologies for data use and management in PM research” that gathered more than 200 attendants from Ministries of Health, Ministries of Science and Technology, R&I funding organisations, research centres and private companies coming from more than 20 countries (LAC, EU and USA). The recent joining of Panama in the ERA PerMed Joint Translational Call 2020 can be considered an example for the great interest PM raises in LAC countries. Further, stakeholders, scientists and health professionals had the opportunity to exchange their experiences in order to build ways of collaboration in PM.
In the last term of 2020, two new interesting events are scheduled: a third Summer School and a second Technical Workshop both on Ethical, Legal and Social aspects of PM. We hope the present pandemic situation due to the COVID-19 will be controlled worldwide by then, allowing the events take place.
More information on the past and upcoming events can be found on the
EULAC PerMed website.
IC2PerMed: Kick-off meeting in February 2020
From 17-19 February 2020, the Università Cattolica del Sacro Cuore (UCSC) kicked off the “Integrating China in the International Consortium for Personalised Medicine” (IC2PerMed) project in Rome, Italy, with the participation of seven European and three Chinese partners (remotely due to the SARS-CoV-2 epidemics in China).
IC2PerMed is a four-year project funded under the Horizon 2020 scheme as a Coordination and Supporting Action (CSA). It is coordinated by Prof. Walter Ricciardi from UCSC, current President of the World Federation of Public Health Associations and Italian Representative at the WHO. The IC2PerMed project aims at providing key solutions for enabling the convergence under ICPerMed of European and Chinese stakeholders, with an orientation towards a Public Health perspective. The project has already started working on the mapping exercise of policies, programmes, standards and initiatives in personalised medicine in Europe and in China. Dissemination and communication actions are ongoing, while a selection of experts for dedicated working groups centred on the ICPerMed Action Plan priorities will start soon. A contribution in this COVID-19 pandemic time was also given by means of a webinar, organised by the European Network of Research and Innovation of Centres and Hubs (ENRICH) in China, with an insight about the genetic testing technology.
Follow us on Twitter (@Ic2PerMed)!
Sino-EU PerMed: Fostering the cooperation between Europe and China in Personalised Medicine
The Sino-EU PerMed project started in January 2020. The project received a two million euros grant from the European Framework Programme Horizon 2020. It aims to foster the cooperation between Europe and China in Personalised Medicine in the next four years.
The project is composed of six excellent research and research management entities in Europe and China, namely the German Aerospace Center - Project Management Agency (coordinator), Fondazione Toscana Life Sciences, Innovation Fund Denmark, Health Research Board Ireland, Jiangsu International Technology Transfer Center and Guangzhou Institutes of Biomedicine and Health.
The European partners are actively involved in ICPerMed as well as related initiatives and activities. Therefore, one of the objectives of this project is to foster collaboration between Chinese health organisations and ICPerMed, and to identify areas of mutual interest.
Find further information on the project webpage:
SAPHIRe: News from Securing the Adoption of Personalised Health in Regions
Online hackathon resource: With the global outbreak of COVID-19 and the race to stop the spread of the disease, communities of tech professionals, data scientists, healthcare professionals, designers, researchers and entrepreneurs are coming together online to collaborate, innovate and quickly find solutions through hackathons. There are many hackathons taking place across Europe. SAPHIRe has collated a list of current and upcoming hackathons on their
website, which they will keep updated.
Research and Innovation related to COVID-19 – an online resource: Regions have spearheaded numerous research and innovation initiatives to respond to the COVID-19 crisis. As a central resource, SAPHIRe have started to collate these regional initiatives on their
website. SAPHIRe would be interested in hearing from any regions who would like to have their COVID-19 related R&I documents added to the SAPHIRe resource. Please get in touch
Online Observatory: In December 2019, SAPHIRe launched its
Observatory, an online database that provides an overview of regional activities in personalised medicine, as well as links to policy documents and major initiatives. Having all this information collated and available in one place, the Observatory will be extremely useful for regional policymakers, funders and other key stakeholders to share relevant information on their policies, projects and innovation activities related to personalised medicine. SAPHIRe encourages anyone interested in their region being represented in the Observatory to complete this
survey or to
contact them for more information.
PERMIT: Kick-off meeting in January 2020
The official kick-off meeting of the PERMIT project took place on 24 January 2020 in Paris, France. All consortium participants and partners attended and actively participated in discussions on all seven project work packages. Presentations were made by work package leads on their respective areas of work in the field of personalised medicine trials.
Since the kick-off meeting, PERMIT has been actively working on its scoping review that will map personalised medicine (PM) research methodologies along the PM research pipeline and identify gaps where recommendations on standards will be essential. An operational definition of PM research was defined for all work within PERMIT as well as the scope of each stage of PM research programmes. The protocol of the PERMIT scoping review is publicly available on
PERMIT project website is regularly being updated with all news, events and future publications of the project.