EU-Africa PerMed –
Results of the scientific and policy mapping
available
The CSA EU-Africa PerMed launched its
activities on 1st of February 2021, and is sharing
the outcome of the first project activities
concerning the Scientific and Policy Mapping. The
mapping aimed to gain knowledge on the health,
research and innovation (R&I) and the policy
landscape in Africa with a specific focus on
Personalised Medicine (PM). A bibliometric
analysis of recent scientific literature was
performed to better understand the scientific
landscape of PM in Africa. In short: almost 82% of
the articles found were related to 13 disease
categories, predominantly infectious diseases,
followed by cancer, immune and nervous system
related diseases. Besides the bibliometric
analysis, a review of health R&I policy
landscape in African countries was performed. The
entire outcome of the mapping activities can be
found here.
Meet EU-Africa PerMed:
- Online Information Days
Content:
1-hour webinar to learn about the project, its
objectives, activities and expected results.
When: 1 December 2021: 11:00 am
(CET) – in ENGLISH and 13
December 2021: 11:00 am (CET) – in
FRENCH Registration
- 1st Stakeholder Workshop - hybrid event
(Nairobi, Kenya)
When: 9-10
February 2022 Interested? Please
contact the project coordinator: erika.sela@innovatec.es
Follow EU-Africa PerMed: contact
form; Twitter @EU_AfricaPerMed.
EULAC PerMed: Clinical
Trials Helpdesk
EULAC
PerMed has recently launched its Clinical
Trials Helpdesk, a platform to facilitate
EU-LAC PM research in clinical trials to
stakeholders of PM research in EU and LAC. This
virtual helpdesk, publicly available and free of
charge, is composed of three main components:
- Regulatory requirements for clinical trials:
A database on national regulations and
Institutional Review Board (IRB) requirements
for PM research in LAC countries. It contains a
brief summary of national regulations for
clinical research and the minimal requirements
from IRBs, and references to the regulations of
those boards (links to websites, or downloadable
PDFs).
- Information on funding agencies for clinical
trials: Additionally, the database includes
information on existing funding opportunities
for PM research in each country, indicating if
the funding can be used for international
collaborations.
- Networking information: A database of
research teams listing those that have ongoing
PM research projects in LAC countries, or in
European countries with a particular interest in
creating partnerships with LAC research
institutions.
The three components allow investigators and
other stakeholders to have key information in a
single and centralised location.
Continuing with the virtual training
activities, EULAC PerMed has organised two new
webinars. “In-silico
models and Personalized Medicine” took place
on 25 November 2021 where Dr.
Camargo (Sirio-Libanes Hospital in Sao Paulo,
Brazil) and Dr. Kirschner (PTJ, Forschungszentrum
Jülich, Germany) shared their experiences with
these models.
Save the date: The “Personalized
Medicine and Infectious Diseases” webinar is
set for 16 December 2021 and will
gather three internationally recognized experts in
the field of infectious diseases Dr. Pion,
(Hospital General Gregorio Marañón of Madrid,
Spain), Dr. A. Martínez (Gorgas Memorial Institute
for Health Studies of Panamá) and Dr. Scudeller
(IRCCS Azienda Ospedaliero-Universitaria in
Bologna, Italy).
HEcoPerMed: Review on
Workhop “Personalised medicine specific health
economic and payment modelling”
The HEcoPerMed workshop “Personalised medicine
specific health economic and payment modelling”
has been conducted on 5 & 6 October 2021 as a
hybrid event in Budapest.
The overall aim of the EC-funded HEcoPerMed
project was to respond to the demand for economic
models to evaluate treatments made possible by
innovations in personalised medicine.
During this by-invitation-only event the
results and achievements of the consortium were
presented. Furthermore, the 1st draft of a
so-called “Position Paper: Personalised Medicine –
How Health Technology Assessment ensures
Value-based Implementation”, including a set of
statements was presented and discussed on-site and
online with around 70 international experts and
stakeholders.
The launch of the final “Position Paper” is
planned together with the presentation of the
overall HEcoPerMed achievements and results in
spring 2022 at a final conference in Brussels.
For further information, see HEcoPerMed – Health
Economic Models for Personalised Medicine.
IC2PerMed:
Update
As we approach the second half of IC2PerMed, we
look back at two eventful years centered upon
expertising, cooperation and mutual learning, and
forward to another two exciting and decisive years
ahead.
An extensive work of mapping in the first year
has led to the preparation of several manuscripts
covering overviewing and comparing the
personalised medicine landscape of the EU and
China regions, investigating policy agencies,
policy planning and implementation, approaches,
initiatives, actors and solutions for complex
issues such as data transfer and protection and
management of Big Data and ICT.
Furthermore, while BBMRI hosts four Virtual
Round Tables focused on Biobanking, Data, ELSI and
Quality, IC2PerMed is currently completing all its
Working Group workshops gathering many experts
from China and Europe to discuss and define
priorities and success factors to successfully
implement Personalised Medicine in the EU and
China. Topics include building awareness and
empowerment among patients and citizens,
healthcare professionals’ education and curricula,
shaping sustainable healthcare, Big Data and ICT
solutions, bringing innovation to market,
translating basic to clinical research and
research funding. The focus groups’ results were
each validated through 12 Delphi surveys
distributed in both English and Chinese aimed at
confirming priorities to be included into six
position papers for the EC.
Lastly, IC2PerMed has also released the WeChat
official page, which spreads also the latest news
and the information on IC2PerMed’s latest
developments.
Further
information |