Publications & Press Releases

Optimizing Clinical Research for PM

PM-related clinical research is essential to validate personalised therapeutic diagnostic and screening approaches as well as specific treatments that can safely optimise the individuals’ diagnosis, care and prevention, thus contributing to solve public health challenges. Policy, research funding and regulation play essential roles in the adaptation of research strategies to the specificities of PM. Therefore, the presented set of recommendations specifically aim to guide these stakeholders to support the successful development and implementation of innovative PM approaches.

SRIA for PM

The Strategic Research and Innovation Agenda for Personalised Medicine supports a wide range of stakeholders and experts to further develop programs, activities, and research towards PM and care, as well as prevention. Its main intention is to support the planned new European Partnership for Personalised Medicine (EP PerMed). The SRIA aims to ensure that the long-term vision of EP PerMed is translated into tailored roadmaps with funding and supporting activities, objectives and measurable outcomes.

Pamplona Workshop Report

This is the report of the 4^th ICPerMed Workshop, entitled 'Preparing the Future for Personalised Medicine: EP PerMed', which took place in Pamplona (Navarra, Spain) on January 17-18, 2023. The goal of this workshop was to discuss with the different involved stakeholders three areas that are relevant for realising the full potential of a Personalised Medicine approach: research, innovation, and implementation. Other essential transversal aspects were also addressed, such as the appropriate supporting framework including incentives, regulation, business models, regional and international perspectives, infrastructures and data access, patients and citizens engagement.

ICPerMed Leaflet 2022

The ICPerMed leaflet gives a short overview of the avtivities of the International Consortium for Personalised Medicine.

Open Access in Personalised Medicine

Open Science and Open Access are key aspects of the Responsible Research and Innovation (RRI) approach. It provides online, free, re-usable and shared access to scientific information (peer-reviewed scientific research articles and research data). In order to implement open access policies and data integration of research data into European databases, ICPerMed has compiled guidelines for personalised medicine research projects.

Brussels Workshop Report

The ICPerMed Workshop "Personalised Medicine: How to Ensure Value-based Implementation" took place as hybrid event in Brussels on 21-22 June, 2022. With this workshop, ICPerMed intended to exchange and find agreements on the mechanisms and key aspects of value-based cross cutting effects to guide an appropriate implementation of personalised medicine (PM) for the benefits of patients and citizens.

ICPerMed State of the Art Report 2021

The ICPerMed State of the Art Report 2021 provides information about ICPerMeds past activities, the upcoming partnership for and activities in the field of personalised medicine

ICPerMed Family Meeting Report

The “ICPerMed Family Meeting – Joining Forces” took place virtually on 9-10 November 2021. The aim of the meeting was to foster collaboration between the involved initiatives and to collect input on future research and implementation approaches.

Guidance Document

ICPerMed and ERA PerMed published a jointly developed guide for the candidate European Partnership for Personalised Medicine – EP PerMed. It addresses decision-makers and stakeholders in the preparation of the candidate European Partnership in Personalised Medicine, EP PerMed.

ICPerMed State of the Art Report 2020

With this State of the Art Report 2020, ICPerMed shares an overview of its activities over the past four years, the progress made and future steps to be taken to fulfil its vision.

Draft Concept Paper

ICPerMed and ERA PerMed published a jointly developed draft concept paper for the candidate European Partnership for Personalised Medicine - EP PerMed.

With this document, ICPerMed and ERA PerMed underline the need for establishing a European Partnership for Personalised Medicine and propose their vision for EP PerMed, its objectives, activities and expected impacts. It also outlines the composition of the partnership consortium and its interaction with the Personalised Medicine ecosystem, on European and international level.

Madrid Workshop Report

The 2^nd ICPerMed Workshop "Citizens, patients and implementation" was organised by the Spanish ICPerMed member ISCIII and took place from 5-6 November 2019 in Madrid.

There were high-level plenary sessions and four working groups. The working groups met in parallel and discussed the following topics:
1. Personalised medicine: How to ensure awareness and empowerment for all citizens?
2. Which are the Ethical, Legal and Social Implications (ELSI) of personalised medicine research and implementation?
3. Transfer of research results into the market: How to optimise a safe, fast and economic process to implement personalised medicine approaches?
4. Personalised medicine in the health system: How to ensure sustainability and an effective collaboration between all health care players as well as with prevention services?

State of the Art Report 2018

With its second State of the Art (StoA) Report, ICPerMed seeks to share information on the consortium’s activities and achievements during the November 2017 to October 2018 period. Besides general information about ICPerMed’s activities (meetings, consortium composition, reports/statements developed, etc.), the 2018 StoA report concentrates on the mapping database1 and the analysis of the data collected/ presented.

ICPerMed Vision Paper

The ICPerMed Vision Paper presents the future vision of ICPerMed on personalised medicine research and implementation by 2030.

ICPerMed Action Plan

The ICPerMed Action Plan sets out a discrete set of actionable research and support activities which will form the basis of the work programme for ICPerMed members and other interested funders over the next two years.

State of the Art Report 2017

With this yearly report, ICPerMed seeks to facilitate the follow-up of the development of Personalised Medicine research and its implementation throughout Europe and beyond. This State of the Art Report resumes the ICPerMed activities performed in the first year since the establishment of the consortium: November 2016 to October 2017. It describes the strategies and achievements ICPerMed delivers on its objectives and serves as an instrument to monitor the efforts of, and steps taken towards, the implementation of the ICPerMed Action Plan.

Milan Workshop Report

The ICPerMed workshop “Innovative Concepts on Data Generation and Use for Personalised Medicine Research” took place on June 26-27^th in Milan, Italy. The workshop was a great success and will support ICPerMed in planning the next steps to initiate European as well as international collaboration in personalised medicine and the implementation of the results into the national health systems.

ICPerMed Leaflet

The ICPerMed leaflet gives a short overview of the avtivities of the International Consortium for Personalised Medicine.

Press Release: ICPerMed Virtual Conference :

26 February 2021 – The second conference of ICPerMed “Personalised Medicine – From Vision to Practice” assembled virtually around 500 viewers from 57 countries. The conference was hosted by the French National Research Agency (ANR) on February 25-26, 2021 and presented solutions and strategies on how to successfully implement personalised medicine approaches.
read more: Press Release: ICPerMed Virtual Conference.

ICPerMed Conference 'From Vision to Practice' – Registration open :

23 March 2020 – The registration for the second conference of the International Consortium for Personalised Medicine (ICPerMed) 'Personalised Medicine – From Vision to Practice' is now open. The conference will take place in Paris, France, at La Maison de la Chimie on October 15-16, 2020, and will demonstrate how personalised medicine will lead to the next generation of healthcare by 2030.
read more: ICPerMed Conference 'From Vision to Practice' – Registration open.

Statement concerning European Partnership :

17 December 2019 – ICPerMed and ERA PerMed published the joint statement "Towards the Implementation of Personalised Medicine in Europe - The Advantage of a European Partnership".
read more: Statement concerning European Partnership.

ICPerMed Workshop 2019 :

12 November 2019 – The second workshop 'Personalised Medicine for All Citizens and Patients within Sustainable Implementation' of the International Consortium for Personalised Medicine (ICPerMed) assembled around 150 experts from 31 countries in Madrid, Spain.
read more: ICPerMed Workshop 2019.

ICPerMed 'Best Practice in Personalised Medicine' Recognition 2020 :

Rome, Italy, 6 November 2019 – The International Consortium for Personalised Medicine (ICPerMed) has published the announcement for their third “Best Practice in Personalised Medicine” Recognition 2020.
read more: ICPerMed 'Best Practice in Personalised Medicine' Recognition 2020.

ICPerMed Vision Paper :

25 September 2019 – ICPerMed published a "Vision Paper" on how the use of personalised medicine approaches will promote "next-generation" medicine in 2030. The vision entails that medicine needs to become more firmly centred on the individual’s personal characteristics and at the same time be more effective and have an economic value. Next-generation medicine should also provide equitable access for all citizens to the best possible healthcare in the future.
read more: ICPerMed Vision Paper.

ICPerMed Conference shows Progression of PM :

21 November 2018 – The first conference ‘Personalised Medicine in Action’ of the International Consortium for Personalised Medicine (ICPerMed) assembled around 300 experts from 32 countries in Berlin, Germany. Around 500 viewers followed the online livestream of the conference. The conference took place from 20 to 21 November and presented best practice examples for successful implementations of personalised medicine approaches in Europe and beyond.
read more: ICPerMed Conference shows Progression of PM.

ICPerMed Conference – Last Chance for Registration :

5 November 2018 – There are only few seats left for the first conference of the International Consortium for Personalised Medicine (ICPerMed). Registration is still possible, but will close on November 9. The conference focuses on best practice examples for successful implementation of personalised medicine approaches and will take place in Berlin, Germany, on November 20-21. A live stream of the conference will be available on the ICPerMed website.
read more: ICPerMed Conference – Last Chance for Registration.

ICPerMed Conference – Final Programme available :

5 September 2018 – The final programme of the first conference 'Personalised Medicine in Action' of the International Consortium for Personalised Medicine (ICPerMed) is now available. The conference focuses on best practice examples for successful implementation of personalised medicine approaches and will take place in Berlin, Germany, on November 20-21. Registration for the conference is still possible, but spaces are limited.
read more: ICPerMed Conference – Final Programme available.

ICPerMed Mapping Database & State of the Art Report 2017 :

19 June 2018 – The International Consortium for Personalised Medicine (ICPerMed) launched the ICPerMed mapping database on funding for research in personalised medicine, and published its first “State of the Art Report 2017”.
read more: ICPerMed Mapping Database & State of the Art Report 2017.

ICPerMed Conference – Registration open :

7 June 2018 – The registration of the first conference 'Personalised Medicine in Action' of the International Consortium for Personalised Medicine (ICPerMed) is now open. The conference will take place in Berlin, Germany, on November 20-21 and will focus on best practice examples for successful implementation of personalised medicine approaches. The preliminary programme is also available now.
read more: ICPerMed Conference – Registration open.

Statement concerning the 1 Million Genomes Declaration :

18 May 2018 – On 10 April 2018 13 Member States signed a declaration, initiated by the European Commission, to establish access to 1 Million Genomes in the EU by 2022. ICPerMed has followed with interest the process of developing the declaration. Recognising the great potential of personalised medicine to improve the prevention and diagnosis of disease and the treatment of patients, ICPerMed aims to coordinate and foster research to develop and evaluate personalised medicine approaches.
read more: Statement concerning the 1 Million Genomes Declaration.

ICPerMed "Best Practice in Personalised Medicine" Award :

19 January 2018 – The International Consortium for Personalised Medicine (ICPerMed) announced today the publication of their first "Best Practice in Personalised Medicine" Award 2018. The objective of this award is to encourage and disseminate best practice examples in personalised medicine.
read more: ICPerMed "Best Practice in Personalised Medicine" Award.

ICPerMed Workshop Report published :

14 December 2017 – The International Consortium for Personalised Medicine, ICPerMed, announced today the publication of their first workshop report. The workshop entitled “Innovative Concepts on Data Generation and Use for Personalised Medicine Research” had taken place on June 26-27th in Milan (Italy).
read more: ICPerMed Workshop Report published.

ICPerMed Action Plan for Personalised Medicine published :

22 March 2017 – The International Consortium for Personalised Medicine (ICPerMed) identifies future research needs in a common Action Plan. The aim of ICPerMed is to boost personalised medicine by an enhanced coordination and alignment of research activities. Over the past year, the members of ICPerMed have developed a common Action Plan with central research and research-supporting activities in all areas relevant to personalised medicine.
read more: ICPerMed Action Plan for Personalised Medicine published.

Official Launch of ICPerMed :

Brussels, 24 November 2016 – Personalised medicine is a promising new concept for dealing with challenges of health and health systems. With the launch of the International Consortium for Personalised Medicine (ICPerMed), European countries aim to coordinate health research policy to advance the implementation of personalised medicine.
read more: Official Launch of ICPerMed.

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