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Workshop “Organizing and maximizing rare disease biological sample data in biobanks”, 29-30 October 2019, Vilnius, Lithuania
9 September 2019 – On 29-30 October 2019, a training workshop on “Organizing and maximizing rare disease biological sample data in biobanks” will take place in Vilnius, Lithuania. This workshop is a part of a series of capacity building programs put forth by the European Joint Programme on Rare Diseases (EJP RD).
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International Conference on Rare Diseases and Orphan Drugs on 11-13 November 2019 in Israel
2 September 2019 – The 14th Meeting of the International Conference on Rare Diseases and Orphan Drugs (ICORD) “Rare Diseases Are Not Orphans” will take place from 11 to 13 November 2019 in Rishon-Lezion, Israel.
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Start of four ICPerMed-related coordination and support actions
19 June 2019 – Through its Framework Programme Horizon 2020, the European Union started funding four actions in support of ICPerMed in 2019. All four actions focus on different aspects of personalised medicine.

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ICPerMed Executive Committee Meeting in Tallinn
19 June 2019 – In June, the ICPerMed Executive Committee met in Tallinn, Estonia to discuss and plan strategy and future activities of the consortium. The meeting was hosted by the Estonian partner, the Ministry of Social Affairs.

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ICPerMed Recognition 2019 – winners chosen
11 June 2019 – ICPerMed announces the winners of the of the ICPerMed “Best Practice in Personalised Medicine” Recognition 2019.
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Save the date: ICPerMed Conference on 15-16 October 2020 in Paris
11 June 2019 – The 2nd ICPerMed Conference will take place on 15-16 October 2020 at the Maison de la Chimie in Paris, France.
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Ministry of Social Affairs and Integration from Baden-Wuerttemberg in Germany joined ICPerMed
6 May 2019 – ICPerMed welcomes the German Ministry of Social Affairs and Integration from Baden-Wuerttemberg as its new member.
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EPMA World Congress 2019 – registration open
30 March 2019 – Registration for the EPMA World Congress 2019 is now possible. The congress will take place from 19-22 September 2019 in Pilsen (Czech Republic).
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First best practice example now online on ICPerMed website
26 March 2019 – ICPerMed will feature best practice examples for the successful translation of personalised medicine research into an added value for the patient as well as examples for policy making and impact analysis on personalised medicine research. A first best practice example featuring the Genomic Medicine Sweden initiative is now online. More will…
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ICPerMed Recognition 2019 – deadline postponed
21 January 2019 – It is still possible to submit proposals for the ‘Best Practice in Personalised Medicine’ Recognition 2019. The deadline for submission was postponed till 4 February 2019.
